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Diabetes Connections | Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections | Type 1 Diabetes
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Now displaying: 2017
Apr 25, 2017

This week, finding the humor in a life with diabetes. Stand-up comedian Chelcie Rice talks about the business of comedy and about using his own life with T1D, including eye surgery, in his act. Chelcie & Stacey also talk about his diagnosis as a young adult, how he uses the comedy circuit to raise money for diabetes causes and to educate about stereotypes.

Stacey also talks about Apple's "secret diabetes" plans and gives another tip of the week from a listener. How can you remember to take that extra vial of insulin from the hotel fridge? A very creative answer...

 

Apr 18, 2017

Roddy Riddle recently completed one of the most brutal & extreme races in the world. The 6633 Arctic Ultra is a 350 solo foot race through brutal cold, wind and isolation. Dozens enter and only a few finish ever year. Roddy is the first and only person with type 1 diabetes to enter the race so far, and the first T1D to finish it. He had to withdraw from the race in 2016. He shares why he was so motivated to finish and what he learned from last time around that helped him not only make it all the way, but come in second.

In our Community Connection this week, we check back in with the Elbow Bump Kid, Logan Merwin. He's raising money for several diabetes causes, including CWD Friends for Life Conference. His big news? He's got a sponsor! We'll talk about how a race truck team got involved.

 

Apr 11, 2017

Anthony Hightower has used Afrezza for the past two years. He credits it (along with a Toujeo, a newer basal insuin) with completely changing his T1D management. In addition to excellent numbers, Anthony shares what else Afrezza has to offer. He explains, he liked it so much, he went to work for Mannkind, the company that makes Afrezza. He and Stacey also talk about the challenges Anthony faced since his diagnosis as a teenager. He admits he spent 20 years trying to avoid thinking about diabetes and credits the online community & the Diabetes Unconference with saving his life.

Stacey also shares what those little "clips" are that come with some pump insets. Her family learned the hard way at the beach a while back! She shares how her husband McGyver'd a solution when they'd left the clips at home.

And, find out how to contribute to our 100th episode coming up soon!

Apr 4, 2017

Neil Greathouse has a fantastic Instagram account ("The Betes") where he posts videos of life with type 1 diabetes. It's an entertaining look at the ups and downs of T1D, but Neil wasn't always able to find humor in his situation. Diagnosed while in the very last stages of Air Force training, he had to put aside a life-long dream. Stacey & Neil talk about the path he wound up taking and how he's used his creativity to help people along the way. Neil has also produced a short film: Type1Day1. In collaboration with Beyond Type 1 and released on Word Diabetes Day in 2015, it highlights the strength of the diabetes community.

Stacey also talks about a new summer NHL program for kids in Canada with type 1 and discusses the JDRF Walks in her area, happening this week. 

Plus, a road trip to all the US National Parks to raise money and awareness around T1D.

 

Mar 28, 2017

This week's guest is on a mission. Ross Baker wants to run a marathon in every state in the US as well as DC and he is just two states away from meeting that incredible goal. He plans to conquer Alaska & Hawaii later this year. Diagnosed with type 1 at age 19, he was at first told not to run at all, that it would be dangerous for someone with diabetes! He didn’t listen and after running a few races, he felt called to try for something big. This is a story that involves determination, faith and some Bojangles sweet tea. 

Stacey also talks about "real people sick" and adjusting basal rates to deal with illness (and mistakes she's made in the past).

Plus, an update on Jack's insulin allergy.

Mar 21, 2017

This week, a new campaign to stop a dangerous problem: DKA before a diabetes diagnosis. Beyond Type 1 wants to educate about the signs and symptoms of type 1 diabetes in a new campaign involving pediatricians. Stacey talks to Tom Scher about the group's new multi-state campaign, how doctors are responding to it and what DKA actually is. 

Stacey also brings us up to date on how people with type 1 diabetes fared in the brutal Iditarod and 6633 Arctic Ultra races.

Plus, if you're a mom with type 1, Glu needs your help. Hear about a survey for women with T1D who've given birth.

Mar 14, 2017

Tom Brobson is JDRF's National Director of Research Investment Opportunities. He was diagnosed with type 1 as an adult and has been involved personally in many artificial pancreas trials, the first of which had him hooked up to a computer in the hospital and not allowed to get up or go anywhere without a healthcare professional by his side. Of course, since then, the trials have included trials with equipment as small as a pump, CGM & smart phone.

Stacey recorded Tom as he gave a presentation at a local JDRF walk kickoff event. He talks about stem cell research, the artificial pancreas project and other advances in diabetes technology. He also talks about approvals and access.

In this episode, Stacey also talks about coughing for pain relief during shots and insertions. Really! We also share the adventures of people with T1D in the Arctic and in Alaska as this episode is released.

 

Mar 12, 2017

Ryan Reed was diagnosed with type 1 diabetes six years ago and was told he'd never race again. At the time, he was moving from California to North Carolina to try to get onto the NASCAR circuit. Instead of giving up, Ryan found a new doctor and got back in the driver's seat. Now a driver on NASCAR's Xfinity circuit, Ryan won at Daytona in February, the same track where he got his first Xfinity win in 2015. Stacey talks to him for this bonus episode at Roush Fenway headquarters in Concord, NC.

Hear more of Ryan's story in this interview from 2016

Mar 7, 2017

This week, a conversation about a medical mystery and a family's search for answers. Nine-year-old Jack Smith was diagnosed with type 1 as a toddler, but in the last year he's become allergic to insulin. His mother, Jaclyn, shares their story with Stacey.

About 2% of people with type 1 diabetes have an insulin allergy, but it’s almost always tied to a type of insulin. They are able to switch and can continue dosing without issues. Jack has reacted to every available type of insulin & all methods of injection or infusion. 

Note: This interview was taped 2/28/2017, just before Jack was to go back to Duke for a new treatment. As it airs (3/7/17) the first IVIG treatment Jaclyn mentions resulted in some serious side effects, sending Jack to a local hospital. He's recovered and plans are in place to try to prevent those symptoms at the next infusion.

You can follow Jack's story here (Facebook page).

 

 

 
Feb 28, 2017

Doris Hobbs is all about style and glamour. A fashion writer, model and blogger, she was diagnosed with type 1 diabetes as an adult, as was her sister. Their father has lived with T1D since age 2. Doris talks about where her fashion sense comes from, why she loves vintage looks and clothing and how looking good is an important part of good health.

Stacey also previews extreme athlete Roddy Riddle's "unfinished business." On March 10th Roddy will take his second crack at the 6633 Ultra, a grueling run that crosses the arctic circle. 

 

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