Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here.
Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry.
Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure!
Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies.
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1:30 Stacey welcome - information about the podcast on YouTube
5:15 Interview with Darrell Greene
49:00 Information on Lilly's faster insulin - Pronto Studies
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JDRF’s Chief Mission Officer Aaron Kowalski talks about what’s new and next in terms of research. He also gives us perspective on what’s come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we’re all very familiar with now, but that almost didn’t happen.
Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1.
Plus.. how do you get rid of needles and Sharps containers? The rules aren’t the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live.
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1:30 Stacey welcome
4:10 Interview with Aaron Kowalski
52:30 Information about Sharps Containers from SafeNeedleDisposal
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The Fox TV show "The Resident" takes on type 1 diabetes and gets it right! This week's episode "The Prince and the Pauper" features two plot lines about diabetes. Stacey speaks with the co-executive producer Andrew Chapman on why this issue and why now.
Chapman lives with LADA (Latent Autoimmune Diabetes in Adults) also known as type 1.5. He tells Stacey there are two other people with diabetes on the writing staff.
See Chapman's play 99 Tropes in Seattle later this year!
Learn more about LADA in previous episodes:
Disney Channels' Jennifer Stone Shares Her Story
Game show episode: Wait Wait Don't Poke Me! (From July)
When TV & Movies get diabetes wrong (Beyond Type 1 article)
Also this week, what researchers are learning about OpenAPS – the do it yourself closed loop – from Twitter conversations! Read the study write up here.
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1:25 Stacey Welcome
5:00 Interview with Andrew Chapman
35:00 Movie & TV T1D Mistakes (other shows and movies)
36:30 OpenAPS and Twitter: a new study (and Stacey shares her social media policy)
41:40 Stacey will be in Syracuse middle of October
42:40 Stacey shares field trip stories (Benny is on one this week)
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A difficult but important interview with Nicole Smith Holdt. Her son, Alec, died in 2017 just after he came off his parents' health insurance and realized he couldn't afford his supplies. He began rationing insulin and died less than a month later.
Stacey talks to Nicole about how this could have happened and what her message is to the diabetes community and to lawmakers. Nicole will be at the #Insulin4All rally and protect Sept 30 at Eli Lilly headquarters.
More information:
Insulin4All Protest information
NPR: High Price of Insulin Leads to Lethal Rationing
Snopes: Did Alec Smith Die Because He Couldn't Afford Insulin
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"Open Up Your Bag" is a new children’s picture book about diabetes. The story behind it takes us into a great conversation with the author Mike Lawson. Mike was diagnosed as a young adult (after initially being misdiagnosed as type 2) and he shares stories about finding the diabetes community, getting involved in organizations like TuDiabetes.Org and Diabetes Hands Foundation and what led him to write the book and start Diabetes Doodles
Plus, a new resource for our community is now available in audio form. Listen to a bit of Bright Spots and Landmines, a diabetes guide by DiaTribe's Adam Brown
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! You can get Bright Spots and Landmines by using this link.
Learn more about A Bad Case and listen to our previous interview with Erin Spineto
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2:00 Stacey Welcome - Hurricane Florence update and "A Bad Case" is being released
5:20 Interview with Mike Lawson
36:30 Stacey talks about Big Blue Test (watch here)
38:00 Audio samples from Bright Spots & Land Mines
43:30 Stacey talks about Chia Pudding - it needs a new name!!
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Big news for Abbott, the makers of the FreeStyle Libre. This summer the FDA okayed a shorter warmup and a longer wear for the glucose monitor. Stacey talks to Tim Dunn, Abbott’s Director of Clinical research. They talk about the challenge of longer wear, the practical info you need to know if you use the Libre, and a look down the road as they partner with companies like Bigfoot.
Plus, a protest planned at the end of the month – all about affordable insulin. We’ll explain how you can help even if you can’t be there in person. Information from T1International here.
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1:30 Stacey Welcome
4:30 Interview with Tim Dunn
40:30 #Insulin4All Protest information
43:00 Stacey upcoming events & shares why in-person connection is important. She talks about the first time she and Benny met a little boy who wore an insulin pump and what a difference that made for them.
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
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Letting go of your college-aged child is a challenge even without type 1 on board! We talk to the College Diabetes Network, a college senior with T1D and her mom about fears, communication and making it work. CDN recently surveyed parents about their fears and we'll share the top ten.
Plus, medical help for your 18+ year old child. Even if they're still on your health insurance plan, you can't assume you'll be able to help in an emergency or access their medical records. Here are a few articles to help:
Consumer Reports - Help your college aged child in an emergency
Grown & Flown - When your college kid has an emergency
And Stacey shares how what she calls on her of worst diabetes parenting moments became one of her best.
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1:33 Stacey welcome, mentions Jewish holiday carb counts from Beyond Type 1 and Project Blue November
3:50 Interview with CDN's Stacey Cunnington, Courtney & Karlyn Gale
55:00 Stacey reads the entire list of Top Ten Fears Shared by Parents of T1D College Students
56:30 Know Better: Medical help for your adult child
59:15 Stacey's not-so-proud parenting moment
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It's been 20 years since Nicole Johnson took the crown, becoming Miss America. That was just five years after she was diagnosed with type 1. At diagnosis, her doctors told her she was too sick to continue college, to pursue her dreams of being a journalist and to have a baby. Nicole shares how she overcame that prediction to go on to finish school, compete and win pageants and to have a child a few years later. We’ll also talk about some controversy among the Miss American organization today.
Other Miss America contestants with type 1 include Sierra Sandison and Caroline Carter (click to listen to our previous interviews with them)
Plus, one small step toward a DIY Omnipod Loop. Learn more about OpenOmni.
Stacey also shares a recent issue with Benny's insulin pump and what they did for a backup plan.
This podcast is not intended as medical advice. Please contact your health care provider with any questions.
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1:50 Stacey Welcome
2:45 Stacey talks about the official launch of Jesse Was Here for those who've lost a loved one to diabetes
4:15 Listen to Nicole win the crown in 1998
6:00 Interview with Nicole Johnson
53:15 Stacey talks about OpenOmni (you can also learn more about NightScout here and OpenAPS here)
56:10 Stacey shares their issue when Benny's insulin pump wouldn't charge
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Tandem's Predictive Low Glucose Suspend is out! Stacey and Benny got the software update on Saturday, August 25, 2018 and this bonus episode includes Stacey's thoughts on how the first few days turned out.
More information on the Basal IQ software here.
Head over to Tandem's portal to sign up to get the update if you already have a Tslim X2 pump and a Dexcom G6
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Instead of a rescue Glucagon shot, how about a nasal spray? A simple spray for emergency low blood sugar is in front of the FDA right now. We speak with Lilly Diabetes Senior Medical Director Dr. Thomas Hardy about the need for this product, what it is and how it works.
In our Know Better segment.. a quick tip about Dexom’s G6 - save your papers!! More in Stacey's Facebook live video here.
And a bit about the Bike Beyond documentary. Stacey says it wasn't what she expected at all. You can buy the DVD here or find out how to host a watch party.
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1:35 Stacey Welcome - thanks to DiabetesMine and Jacobs Media (& Elsie Escobar) for featuring us in recent columns
5:30 Interview with Dr. Thomas Hardy, Medical Director for Lilly Diabetes
28:30 Stacey shares her mistake when she was training again on injectible glucagon
32:00 Dexcom G6 information - keep your paper
35:30 Bike Beyond - Stacey's review of the documentary
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