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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Now displaying: 2019
Jun 25, 2019

Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. 

Join the Diabetes Connections Facebook Group! 

Learn more about the ADA Dietary Guidelines for 2019 

In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think.

Find Out About Automated Insulin Delivery, the book by Dana Lewis

And Tell Me Something Good: a small act at a Starbucks makes a big difference.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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00:00 Open/Tease - What's on the show this week?

1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you. 

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6:00 Interview with Hope Warshaw, RD, CDE

35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis

40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way).

45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry.
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Jun 18, 2019

This week – Dexcom’s CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year. 

Join the Diabetes Connections Facebook Group! 

Sayer also shares news about Dexcom’s role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we’ll stop seeing the G4.

Learn more about the top research from ADA 2019 

In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust. 

And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years.


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00:00 Open: What's on the Show This Week?

1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more. 

5:45 Interview with Dexcom CEO Kevin Sayer

42:45 Community Connection all about DiabetesWise

45:35 TMSG: TrialNet's Teplizumab prevention study 


Previous interviews with Dexcom:

CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors

CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions

CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration

CEO Kevin Sayer - March 2018 Dexcom G6 Approved

Former CTO Jorge Valdes- June 2017 Apple watch integration discussion, G5 for Android, Dexcom company discussion 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 


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Jun 11, 2019

Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info.

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Learn about Buzzy and Shot Blocker (pain reduction in shots)

MedT's iPort Advance (what Stacey calls an inset for shots)

Previous episode on Getting Diabetes Gear to Stick in the Summer

In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY?

FDA Warning RE: DIY devices

Read Katie DiSimone's post about the FDA and DIY

And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest!

Taylor Adams Summits Mt. Everest with T1D

History of T1Ds on Mt Everest

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:00 Show Open -What's on this week?

1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming! 

Sign Up For the Newsletter Here

5:10 Ask the D-Moms

38:00 Community Connection: DIY & the FDA

42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

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Jun 4, 2019

With Father’s Day coming up we’re taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. 

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Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind.

In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We’ll find out about Project 50 in 50 and how you can get involved.

Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. 

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00:00 Show open and "tease" - what's on the show this week?

2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 

4:50 Interview with Mark & Alan of Diabetes Dads

39:00 Stacey talks about diabetes camp (continuing the conversation from the interview)

41:00 Community Connection: Project 50 in 50

45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 30, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. 

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Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode.

Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about.

Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. 

To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 28, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. 

Join the Diabetes Connections Facebook Group! 

Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following.

In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat.

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And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn’t have type 1 but supports her friends who do.

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1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago!

6:55 Interview with Gary Scheiner

36:00 Community Connection: Diabetes Camps for Grownups

40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure.  And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. 

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 21, 2019

For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. 

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In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years!

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And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference.

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00:00 Show Open - What's going on this week?!

1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming!

5:15 Interview with Kerri Sparling and her mom, Debbe

40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM.

55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

May 16, 2019

Steel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie’s release.

The movie has become a touchstone and a bit of a hot spot for  women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister’s death then the blockbuster movie.

Join the Diabetes Connections Facebook Group! 

Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids.

Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced.

Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children.

Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

 

Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same)
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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

May 14, 2019

Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. 

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Moira shares what her medical crisis has taught her about diabetes.

Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US.

More info on the Caravan here

Newsweek article here

Previous interview with Lija about traveling the world with T1D

Previous interview with Quinn

And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley!

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2:00 Stacey Welcome

5:20 "Dear D-Moms" Stacey & Moira answer your questions

51:30 Community Connection: Caravan to Canada 

1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation!


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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

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May 7, 2019

You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he’s lived with since he was 13.

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It's a painful skin condition called Hidradenitis Suppurativa or HS.  It’s not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we’ll also have some fun talking about American Idol.

Check out Jackson's TedX Talk here

Here's his American Idol Audition

Information on the Auto-Immune Protocol Diet Jackson mentions

Plus.. you’ll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we’ve seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. 

More on untethered with Dr. Steve Edelman

Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more.

And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community.

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1:30 Stacey welcome - she shares some of Benny's progress

4:00 Interview with Jackson Gillies

30:00 Stacey interviews Benny 

44:30 Stacey talks in more detail about the untethered regimen

50:51 TMSG

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

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