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Diabetes Connections | Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections | Type 1 Diabetes
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Now displaying: May, 2019
May 30, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. 

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Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode.

Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about.

Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. 

To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 28, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. 

Join the Diabetes Connections Facebook Group! 

Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following.

In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat.

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And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn’t have type 1 but supports her friends who do.

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1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago!

6:55 Interview with Gary Scheiner

36:00 Community Connection: Diabetes Camps for Grownups

40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure.  And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. 

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 21, 2019

For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. 

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In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years!

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And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference.

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00:00 Show Open - What's going on this week?!

1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming!

5:15 Interview with Kerri Sparling and her mom, Debbe

40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM.

55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Click here for iPhone      Click here for Android  

May 16, 2019

Steel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie’s release.

The movie has become a touchstone and a bit of a hot spot for  women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister’s death then the blockbuster movie.

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Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids.

Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced.

Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children.

Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

 

Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same)
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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

May 14, 2019

Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. 

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Moira shares what her medical crisis has taught her about diabetes.

Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US.

More info on the Caravan here

Newsweek article here

Previous interview with Lija about traveling the world with T1D

Previous interview with Quinn

And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley!

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2:00 Stacey Welcome

5:20 "Dear D-Moms" Stacey & Moira answer your questions

51:30 Community Connection: Caravan to Canada 

1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation!


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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

May 7, 2019

You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he’s lived with since he was 13.

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It's a painful skin condition called Hidradenitis Suppurativa or HS.  It’s not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we’ll also have some fun talking about American Idol.

Check out Jackson's TedX Talk here

Here's his American Idol Audition

Information on the Auto-Immune Protocol Diet Jackson mentions

Plus.. you’ll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we’ve seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. 

More on untethered with Dr. Steve Edelman

Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more.

And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community.

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1:30 Stacey welcome - she shares some of Benny's progress

4:00 Interview with Jackson Gillies

30:00 Stacey interviews Benny 

44:30 Stacey talks in more detail about the untethered regimen

50:51 TMSG

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

May 2, 2019

A Diabetes Connections Extra! We take a deep dive into low blood sugar with a frank talk about what hypoglycemia means, what the dangers are, how to treat and more

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This is the extended, full version of our conversation about lows. As with all of our "Extra" episodes, an excerpt ran in the episode just before the this one. Look for Extras the last week of each month.

Stacey talks to Shannon Johnson, who was diagnosed with LADA in her early 20s.  Shannon is also a CDE and a pump and CGM trainer.

Low blood sugar basics (JDRF)

Low blood sugar info (ADA)

 

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 

Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

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