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People with diabetes often live with other conditions as well. Find out about a new campaign called Now You See Me, an effort by the folks at Riding on Insulin to educate about living with multiple diagnoses.
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Stacey talks to professional snowboarder and founder of ROI Sean Busby who lives with T1D and Lupus. It took Sean a long time to let an accurate type 1 diagnosis and even longer to determine he has lupus. He shares the story of that journey, explains how he got back to competitive snowboarding and why he started Riding on Insulin.
We find out more about ROI from Mollie Busby. When she and Sean aren't skiing and snowboarding and teaching kids how to love the outdoors, they live in a Yurt in Montana!
Visit Beyond Type 1 for more information on the #NowYouSeeMeCampaign
Find out more about the Charlotte ROI/JDRF event we talk about
In our Know Better segment.. A new study about adults, type 1 and other autoimmune conditions.
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1:45 Stacey Welcome
4:30 Interview with Sean Busby
43:00 Know Better: study about type 1 diabetes and other autoimmune conditions
47:00 Community Connection with Mollie Busby
1:02:00 Stacey shares her Riding on Insulin story
Where will Stacey be?
May: Lilly Blogger Summit
May: JDRF One Challenge with Riding on Insulin
July: Children with Diabetes Friends for Life
October: Children with Diabetes Falls Church
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Stephan Shaul was diagnosed with type 1 as an adult and says finding the diabetes online community changed his life. Stephan writes the blog Happy Medium and hosts the podcast, Diabetes By The Numbers. He recently joined Maryland’s Advisory Council on Health and Wellness and is part of 2018 Reader Panel at Diabetes Forecast magazine.
Stacey also speaks to NBA All Star Dominique Wilkins. Diagnosed with type 2 just after he retired, Wilkins is now working with Dario to educate people about diabetes.
More about Dario in this episode from 2016
In our Know Better segment, new guidelines for adjusting insulin dosing based on the Dexcom CGM.
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2:00 Stacey Welcome - Brec Bassinger wins Fear Factor
5:00 Interview with Stephen Shaul
35:30 Interview with Dominique Wilkins
49:30 Know Better - new guidelines on dosing from Dexcom
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JDRF's President and CEO Derek Rapp joins Stacey for a wide-ranging interview. We talk about everything from stem cells to insulin prices to what JDRF is doing for adults with type 1. Rapp has headed up JDRF since 2014 and has a son with type 1. He shares his story and answers your questions.
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Note: This interview was taped before the Special Diabetes Program had been extended. SDP is the program that gives $300 million for diabetes research to the National Institutes for Health. Stacey & Derek talk about SDP and we left those questions in to give you a better idea of what the program is all about.
In our Know Better segment, Stacey gets personal about a health procedure she had recently and talks about self care. She references this article about stress and parents of children with chronic illness. And she explains how a colonoscopy can be a perfect way to spend Valentine’s Day. Really.
Plus, #DPodcastWeek wraps up with a promo for Diabetes Daily Grind's Real Life Diabetes podcast.
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2:00 Stacey talks about her past involvement with JDRF and shares a story about Dr. Mark Parker (read here), the retiring head of her local endocrinology practice.
4:15 Interview with JDRF's Derek Rapp
47:15 Feedback from last week's episode. Should people with T1D be wary of marrying someone else with it? We got a comment about increasing the genetic risk for children with T1D and that sparked a great discussion in our Facebook Group.
50:00 Stacey talks about her recent health screening and stress among T1D parents
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Lawmakers are starting to take a closer look at the price of insulin. Nevada became the first to pass a law last summer regarding transparency and Colorado may soon do the same. Stacey talks to Colorado State Representative Dylan Roberts about the bill he’s put forward and how it could change things. He also shares his very personal connection to type 1.
In our Community Connection this week, adventurer and solo sailor Erin Spineto takes on a new challenge. She's making a comedy web series about T1D? We’ll explain what A Bad Case is all about.
And Know Better this week about efforts to make the the Omnipod system part of the open source artificial pancreas project.
On Facebook? Join our group of awesome listeners!
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3:40 Catching up on previous guests: Stacey talks about the Diabulimia conference happening this November and announces that fitness coach Christel Oerum has become an American Citizen!
6:00 Interview with Rep. Dylan Roberts
26:00 Interview with Erin Spineto
36:30 Stacey talks about OpenOmni efforts
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He's lived with type 1 for more than 56 years and was one of the first people ever to use an insulin pump and later a CGM. In fact, Yerachmiel Altman was one of the first people to make the switch from two shots a day to what we now call multiple daily injections (MDI) almost 40 years ago. Altman is an engineer and computer scientist who worked for d-tech companies. Now, he wants to help educate kids and adults about living with type 1 through books and games.
We talk about "The Moose and the Pump," "I Can Help Take Care of Me," and Altman's concept for a board game, Insulinopoly. He also shares the changes he's seen in technology over the years and his hope for the future.
Also this week, Noah’s March is at an end. We first met this family when they set off from florida to Washington, crossing the country for diabetes awareness and to raise money for research.
Plus, if you're thinking about those New Year’s resolutions, find out how Diabetes Strong can help you start 2018 off in a great way.
Join the New Diabetes Connections Facebook Group
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2:30 Stacey explains the podcast is now available on Spotify and goes through other ways to listen.
5:00 Stacey talks about Diabetes Strong and how to sign up for the January challenge
6:30 Stacey announces the Dexcom #WarriorUp charity campaign raises $100,000 for diabetes charities
8:05 Interview with Yerachmiel Altman
33:15 Interview with Noah's March
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Go behind the scenes! Join the new Diabetes Connections Facebook Group!
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Kelly Kunik was 8 years old when she was diagnosed on October 31, 1977. 40 years later, she is a thriving advocate, humorist and blogger (check out her site, Diabetesaliciousness). And she hasn't missed a Halloween since. Kelly shares her story - quite a few people in her family have type 1 – and gives great advice for all of us. You can also learn more about Kelly at I Wish People Knew That Diabetes....
Shoptalk this week with two companies trying to make diabetes look better. Stacey talks to Gretchen Otte from Myabetic & and Katie Larsen from Pocket Innerwear.
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3:00 Stacey talks about Halloween, T1D and her family
8:00 Interview with Kelly Kunik
45:30 Shoptalk with Myabetic
49:40 Shoptalk with Pocket Innerwear
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Weston Nordgren is the Vice President of the Nightscout Foundation, and Community Liaison for CGM in the Cloud worldwide. Behind those titles is quite a story. We talk to Wes about his son’s diagnosis as an infant, their family's journey to find solutions and the power of the #WeAreNotWaiting community.
Wes recently represented the CGM in the Cloud Facebook group at an exclusive international Facebook conference. He shares what he learned there and talks about his son's experience with Looping and on the new Medtronic hybrid closed loop pump. We also mention OpenAPS.
In our shoptalk segment, no more chalky glucose tabs? Chris Angell says he needed something better to treat his lows, so he created GlucoLift.
You'll also hear a clip of Polaroid from Truck Stop Honey's debut album. It's a very personal story and song from previous guest Amanda Jo.
Ross Baker is another previous guest, Stacey calls him T1D's Marathon Man. He is set to run in the Maui Marathon on October 15th, completing an incredible mission of running a marathon in every US state and Washington DC.
Find out more about Animas and their message to customers as they exit the insulin pump business.
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3:30 Stacey talks about Truck Stop Honey, clip of Polaroid
5:30 Animas/One Touch mention
7:00 Stacey talks about Ross Baker & the Maui Marathon
10:00 Interview with Weston Nordgren of Nightscout/CGM in the Cloud
1:01:30 Shoptalk with Chris Angell of GlucoLift
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As always, thanks for listening!!
#Insulin4All is a campaign to bring attention to, and do something about, the high price of insulin. Stacey talks with T1International's founder and director Elizabeth Rowley about what the organization is trying to do and how we can all get involved.
A demonstration is planned in front of Eli Lilly and Company international corporate headquarters in downtown Indianapolis, Indiana Saturday, September 9th at 1-3pm. There's also an online day of action on September 8th.
Find out more about the movement here.
Join the #Insulin4All event Facebook group
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Diabetes Forecast Magazine names their People to Know for 2017. Modeled after Time Magazine’s top 100, it’s all about finding the movers shakers and game changers in the diabetes world. On the list? Your host, Stacey Simms!
You'll hear from Diabetes Forecast Editor Kelly Rawlings, who shares how this special issue comes together. Kelly also talks about how she balances having type 1 for more than 40 years and working in the diabetes field.
Stacey is honored to be part of this incredible list. She was interviewed for the issue by radio show host Jonathan Shuffield. Listen to their interview and then hear why Jonathan kept his type 2 diagnosis to himself for a very long time.
Time codes:
9:00 Kelly Rawlings, Diabetes Forecast Editor
31:00 Jonathan Shuffield interviews Stacey
56:30 Shuffield shares his story
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Diabetes Connections and Stacey are nominated for a podcast award! Please add your endorsement to the WEGO Health Awards
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As always, thanks for listening!!
After ten weeks and more than 4000 miles, 20 riders with type 1 diabetes completed their epic journey from New York to California. In this episode, hear the heart-pounding and emotional Bike Beyond finish and listen to the man who started it all talk about what the event has meant to him. We also catch up with several riders during a rest day a few days before the finish. Those interviews took place while they were relaxing in a hot tub (a first for our show)!
Stacey also talks about the great people behind the Real Life Diabetes Podcast and shares events she's traveling to in the next few weeks.
Find out more about supporting Bike Beyond so that Beyond Type 1 can continue to fund diabetes programs (listed here)
Time Codes:
8:30 Bike Beyond finish line and front tire "dip"
12:30 Walt Drennan speaks about finally feeling "normal."
Six Bike Beyond riders talk about the trip:
18:15 Perri Silverheart
22:00 Abbey Brau
29:30 Matt Swain
34:50 Sid Sharma
39:00 Cassidy Robinson
45:30 Jesse Lavine
Diabetes Connections and Stacey are nominated for a podcast award! Please add your endorsement to the WEGO Health Awards
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
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As always, thanks for listening!!
This summer, some diabetes camps have had a few special visitors. American Idol’s Crystal Bowersox and Olympic Skier Kris Freeman have been talking to kids about following their dreams while living with type 1 diabetes. It's part of the Lilly Camp Care Package which provides scholarships, education, ambassadors and insulin to diabetes camps.
Kris Freeman is hoping to make the Olympic Ski Team for the 5th time next year. He was told at diagnosis that he needed to give up his Olympic dreams. Instead, he's on track to appear at his fifth Olympic games next year.
Crystal Bowersox was the runner up in American Idol in 2010, the 9th season of the show. Just out with a new album, she talks about why she comes back to the Friends for Life Conference and what she gets out of sharing her story with kids and adults with type 1.
We also profile Bike Beyond rider Jesse Lavine, talking food, college and why he decided to jump into this cross country adventure.
Plus, information about back to school:
Register for the ADA Safe at School Webinar August 10th
Beyond Type 1 Back to School Info
Request a JDRF Back to School Toolkit
We need your help! Diabetes Connections and Stacey are nominated for a podcast award! Please at your endorsement to the WEGO Health Awards
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Click here for iPhone Click here for Android
Sign up for our newsletter here
As always, thanks for listening!!
Every two years JDRF brings 150 children to Washington DC to tell their stories to members of Congress. This week, you'll hear how Children's Congress works, who attends and what this event means for families who participate, even years later. There's so much going on in this episode, we broke it down by time code below!
We also continue our look at Bike Beyond, an epic cross country adventure from Beyond Type 1. 20 riders with type 1 diabetes traveling from New York to California all summer long.
5:10 Silvi Pold, diagnosed type 1 at age 8 is the social media and activities coordinator for Bike Beyond. Silvi shares why, as someone who loves outdoor adventure, even she thought a team of T1D bikers riding cross country was an "audacious" goal.
21:30 Alisa Norris, Chief Marketing and Communications Office at JDRF and a mother of two T1D sons explains how JDRF Children's Congress got started and what happens during the 3 day event.
36:00 Brec Bassinger is best known for the title role in Nickelodeon's "Bella and the Bulldogs." She's also starred in TV's "The Goldbergs," "School of Rock," and co-stars in the upcoming feature movie "Status Update." Brec is attending JDRF CC as a special guest this year. She talks about what helped her pursue her dream of acting after a T1D diagnosis at age 8. Stacey's son Benny sits in on the interview - he and Brec swap some Nick Jonas stories!
55:30 Lauren Stanford attended JDRF CC at age 11 as a delegate and again two years later as Kid Chair. Lauren shares how much the experience meant to her then and how it's influenced her as she pursued a career in Washington, DC.
We need your help! Diabetes Connections and Stacey are nominated for some podcast awards! Please check them out and vote:
People's Choice Podcast Awards (voting closes 7/31)
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As always, thanks for listening!!
This week we find out all about a new reality TV show called Reversed. It premieres July 18th on Discovery Life Channel featuring people with type 1 and type 2 diabetes. The brainchild is producer & host Charles Mattocks and he’s well aware that the name is raising eyebrows.
Stacey talks to Charles about the show, his opinions about the diabetes community and healthcare providers/pharmaceutical companies. He talks about why that's already rubbed some people the wrong way and shares some of the tough-love methods you'll see on the show.
Plus, week six of our coverage of Bike Beyond! 20 riders, all with type 1, heading from NY to California. This week, you'll hear from Amanda Oberski.. who at first.. wasn’t a fan of the idea of a cross country ride. In fact, she thought it sounded horrible!
And is that diet soda really diet? This article from MySugr gave Stacey the idea to check once and for all. She'll share how it really helped on a recent trip to Disney World.
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A bonus episode this week to get the word out about Banting's Ghost. Stephen Richert is a photographer and film maker who was diagnosed with type 1 at age 16. His website and project Living Vertical is a way to document his adventures and share his family's story. Now, Stephen is working on a new project: documenting the insulin access crisis in America.
Named after Sir Frederick Banting, one of the researchers who discovered insulin in 1923 and sold his share of the patent for $1, Banting's Ghost is a way to document the people who are struggling. Stephen is looking for funding - you can learn more and donate here.
The deadline for the first phase of funding is June 30th, which is why we're pushing out this bonus episode. If you’re hearing this episode after June 30th, please check out the links anyway to stay up to date with the project and how you may still be able to help.
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As always, thanks for listening!!
This summer, 20 people with type 1 diabetes will make an incredible journey. From June 3 to August 11, Team Bike Beyond is crossing the USA, cycling from New York to California. This week, meet the man who asked Beyond Type 1 to take a chance on the event, and the woman who said yes.
Stacey talks with cyclist Walt Drennan and Beyond Type 1 CEO Sarah Lucas about how the idea for the trip came about, the work that went into launching the ride and what they hope to accomplish along the way.
Each week during Bike Beyond, Diabetes Connections will bring you stories from the ride and profile a different cyclist. They're not professionals, just people with type 1 who wanted to take an extraordinary challenge. (There are actually 20 riders and one D-Mom along on this journey).
Stacey also shares a bit about the end of the school year & how the first year of middle school went for her son.
Plus, we talk about the summer diabetes conferences on the calendar like ADA, Friends for Life & AADE.
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Amy Tenderich is the founder and Editor-in-Chief of DiabetesMine, one of the oldest and most respected diabetes blog sites. Ten years ago, she wrote an open letter to Steve Jobs about diabetes technology. The letter went viral and Amy turned that energy and feedback into an international crowd-sourcing competition called the DiabetesMine Design Challenge. That led to the influential annual DiabetesMine Innovation Summit, and a biannual meeting of tech developers called the DiabetesMine D-Data ExChange, which is happening again June 9.
Stacey & Amy talk about what prompted her to write that letter and what she thinks has changed most since that time. Amy also shares her personal story, she was diagnosed as an adult in 2003, and explains what the D-Data ExChange is all about.
Also this week, Stacey shares a follow-up about a previous Community Connection, Willl's Way. We talk about getting diabetes gear to stick in the summer sweat and wet (listen to the episode referenced here) and get ready for Bike Beyond. Diabetes Connections is partnering with the folks at Beyond Type 1 to bring you stories from an epic cycling trip from NY to San Francisco.
Diabetes Connections is now available as an app!
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This week, finding the humor in a life with diabetes. Stand-up comedian Chelcie Rice talks about the business of comedy and about using his own life with T1D, including eye surgery, in his act. Chelcie & Stacey also talk about his diagnosis as a young adult, how he uses the comedy circuit to raise money for diabetes causes and to educate about stereotypes.
Stacey also talks about Apple's "secret diabetes" plans and gives another tip of the week from a listener. How can you remember to take that extra vial of insulin from the hotel fridge? A very creative answer...
Neil Greathouse has a fantastic Instagram account ("The Betes") where he posts videos of life with type 1 diabetes. It's an entertaining look at the ups and downs of T1D, but Neil wasn't always able to find humor in his situation. Diagnosed while in the very last stages of Air Force training, he had to put aside a life-long dream. Stacey & Neil talk about the path he wound up taking and how he's used his creativity to help people along the way. Neil has also produced a short film: Type1Day1. In collaboration with Beyond Type 1 and released on Word Diabetes Day in 2015, it highlights the strength of the diabetes community.
Stacey also talks about a new summer NHL program for kids in Canada with type 1 and discusses the JDRF Walks in her area, happening this week.
Plus, a road trip to all the US National Parks to raise money and awareness around T1D.
Doris Hobbs is all about style and glamour. A fashion writer, model and blogger, she was diagnosed with type 1 diabetes as an adult, as was her sister. Their father has lived with T1D since age 2. Doris talks about where her fashion sense comes from, why she loves vintage looks and clothing and how looking good is an important part of good health.
Stacey also previews extreme athlete Roddy Riddle's "unfinished business." On March 10th Roddy will take his second crack at the 6633 Ultra, a grueling run that crosses the arctic circle.
Wil Dubois has written a weekly diabetes advice column for DiabetesMine for more than ten years. Called "Ask D'Mine," Wil answers questions with straight-talk, a blunt attitude and understanding that comes from experience. Diagnosed type 1 as an adult (and first misdiagnosed) he's also a diabetes author and community educator.
Stacey & Will talk about the column, Wil's diagnosis and about working in an area of the country where diabetes educators and endos are few in number and access. Wil also shares which columns generated the strongest reactions from readers.
This episode also features information about Diabetes Podcast Week. Plus a way you or your business can help the Spare a Rose campaign get life-saving diabetes supplies to children in developing nations while also getting a mention on the show.
Two very different guests this week, each of whom is educating about type 1 diabetes in their own way. When an FDA panel considered allowing a labeling change for the Dexcom CGM, 15-year-old Caroline Dorn testified about her experience. Dorn joined advocates and health professionals telling the panel why it should allow insulin dosing off the Dexcom G5 without a confirming fingerstick. Stacey talks to Caroline and her mother about why they traveled to Washington DC to do this and gets their reaction to the FDA panel approving the change (it now goes to the full FDA).
Brandon Denson was diagnosed with type 1 as a high school senior and went on to play college and professional football. He also had an appearance on American Ninja Warrior, with his insulin pump site and CGM sensor in full view. Stacey talks to Brandon about how he continues to inspire and his work with children both with and without type 1.
Plus, a close call for Stacey. What happens when the mail-order insulin box is mistaken for a frozen delivery? After almost ten years of dealing with type 1, Stacey explains you can still be sure to expect the unexpected!
When the Miss America Competition gets underway on September 11, our eyes will be on Miss New Hampshire Caroline Carter. Diagnosed with type 1 diabetes at age 10, her first passions were basketball and theater. Pageants came along later and she found great success, becoming Miss America Outstanding Teen New Hampshire in 2014 and then Miss New Hampshire 2016 in May.
Caroline talks to Stacey about wearing her diabetes tech (pump and cgm) during pageants and how she prepares for the long hours and constant travel. She talks about her friendships with Miss America 1999 Nicole Johnson and Miss Idaho 2015 Sierra Sandison, both of whom have T1D.
You can vote for Caroline as the People's Choice for the Miss America Competition in the link below. The winner of this voting moves onto the pageant finals.
Stacey also shares her advice for parents with children going back to school right now, including a letter/email she sent home to parents when her son was in elementary school.
Many parents of young children with type 1 diabetes have found childcare very difficult to navigate. But rarely are children with type 1 excluded, in writing, from daycare, camp and before and after school programs. That’s the case right now, though, in the US Military. An Army policy dictates that T1D kids can’t be cared for in those programs. Recently, the American Diabetes Association joined a lawsuit to try and change that. Stacey talks to Sarah Fech-Baughman, the director of litigation for the American Diabetes Association. Find out more about this case, what you can do if you have trouble finding childcare and Sarah’s unique connection to type 1.
This summer, Nichole Nichols reached out to her state lawmakers for help navigating the system for her T1D daughter and other families having issues with Medicaid/Children's Health Insurance Program (CHIP) . Instead of guidance, she got a pretty rude response. Rep. Jeffrey Guice emailing "I'm sorry for your problem. Have you thought about buying supplies with the money you earn?" Nicki responded by publishing the email on social media and the diabetes community, then the national media, picked up the story. Rep. Guice apologized and Nicki received support directly from Medicaid and her state (but not from Guice). However, she says what happened next at the legislature was even worse.
In this episode, Stacey also talks about the new UK Prime Minister, Theresa May, who was diagnosed with type 1 diabetes three years ago.
Her videos bring humor, instruction and support to thousands of people with diabetes. Diabetic Danica, as she's known, has more than 14-thousand subscribers on her very popular YouTube channel. But she wasn’t always in a place to help others. When diagnosed at age 11, Danica needed a lot of help herself. We’ll talk about how she got from that scared 11 year old, to being a registered nurse and all those subscribers today.
In our community connection this week, we find out about Type 1 Diabetes Day at the Georgia State Capitol. Trip Stoner, who was diagnosed with T1D as an adult, talks about her effort to educate state lawmakers. She's joined by Dr. Jonathan Ownby from Atlanta Diabetes Associates.
Stacey also talks about next week's Children with Diabetes Friends for Life Conference and a new post by Scott Hanselman called, "The Promising State of Diabetes Technology in 2016."