Dexcom has released a few new studies about how people use their continuous glucose monotoring systems. Stacey talks about them with Tomas Walker, Dexcom’s Director of Clinical Projects and a certified diabetes educator. The two studies, released at the American Diabetes Association's Scientific Sessions look at how people use a CGM in the real-world, outside of a clinical setting.
For example, the FDA does not currently label Dexcom for use in making insulin dosing decisions; we are supposed to always confirm with a finger-stick. Of course, not everyone does this and Dexcom wanted to learn more about how and why. Another study looks at how setting the threshold alerts (the high and low alerts) within the system affect how people use a CGM and whether their blood sugar outcomes and A1Cs are affected.
In this episode, Stacey also announces the winners of the Pebble Time Smartwatch Giveaway (thanks to all who entered)!
She also talks about carrying supplies when in different theme parks, including going over the rules for carrying bags on rides at Disney World and Universal.
Ernesto Prado always wanted to be an astronaut but when he was diagnosed with type 1 diabetes as a teenager, that dream had to change. He found a way to work in the space program anyway, as a technical project manager at the Johnson Space Center in Houston. He says going to work every day is a dream come true, and he has even bigger goals for his career. Ernesto's journey wasn't easy, his family wanted him to keep diabetes a secret at first, and he had some very bumpy times in college. He shares what helped him get back on track, mistakes he's learned from and why he wants people with diabetes to keep pushing the boundaries of what others think they can do.
Our one year anniversary contest continues! Enter to win one of two Pebble Smartwatches at www.diabetes-connections.com. Contest closes on June 12, 2016.
Please vote for us in The Podcast Awards! Diabetes Connections made the final 10 shows in the country for the Health category. Voting determines a national winner. Please vote at www.podcastawards.com
Jason Adams is the co-founder of CGM in the Cloud, said to be the biggest type 1 diabetes group on Facebook. With more than 18,000 members and still growing, it's a place to share ideas, advice and experience with sending information from Continuous Glucose Monitors into the cloud. In other words, moving the CGM information onto web-based devices so that BG numbers can be viewed remotely in a variety of ways. Adams explains how his daughter's T1D diagnosis led him to become the first non-programmer using Nightscout (the first open source program to "free" the data from a Dexcom CGM) and walks us through the founding of CGM in the Cloud. Adams says he initially expected the group to serve about 15-20 local friends!
This episode also kicks off our one year anniversary contest! Enter to win one of two Pebble Smartwatches at www.diabetes-connections.com. Contest closes on June 12, 2016.
Please vote for us in The Podcast Awards! Diabetes Connections made the final 10 shows in the country for the Health category. Voting determines a national winner. Please vote at www.podcastawards.com
The FreeStyle Libre is a newer way to check blood glucose levels but is not yet available in the United States. The system consists of a sensor, with a wire underneath the skin, like a traditional Continuous Glucose Monitor and a controller. To see blood glucose readings the user holds the controller up to the sensor. Abbott Diabetes Care calls the Libre a Flash Glucose Monitor. Stacey talks to Abbott’s Senior Director of New Product Innovation, Joel Goldsmith. As of this airing, the Libre is available in Europe and is expected to launch in Australia in a few weeks. Stacey also talks about the end of the school year, looking ahead to Middle School for her son with type 1 and advice about 504 plans.
In early May, United Health Care announced that Medtronic would be its preferred provider of insulin pumps. Adults over the age of 18 who have UHC insurance will not be able to have any other brand of insulin pump covered. This set off lots of discussion within the diabetes community and prompted this special episode of Diabetes Connections. Stacey talks to Christel Aprigliano of Diabetes Patient Advocacy Coalition (DPAC), Gary Scheiner, a diabetes educator with Integrated Diabetes Services, and Mike Hoskins, managing editor of DiabetesMine. This episode was partially recorded on the video platform Blab.
Moira McCarthy Stanford and her husband, Sean Stanford, were recently honored by the New England Chapter of JDRF at the Boston One Night Gala. Moira is an author, speaker, dedicated diabetes advocate, mentor and educator. When her daughter, Lauren, was diagnosed 18 years ago, Moira jumped into the diabetes community and hasn't looked back. Stacey talks to Moira about this honor and about the dress she wore to the Gala. Seamstress (and type 1 mom) Darlene Winn crafted it and hand-embroidered dozens of names into the lining - names of "T1D heroes I love," says Moira. You'll also hear from Moira & Sean's daughters, Lauren and Leigh. They talk about what this honor means to their family and how their parents kept a balance of diabetes management, helping the community and living a full and happy life outside of T1D (Leigh does not have diabetes). Stacey also talks with the JDRF chapter about why they chose Moira and to the director of the JDRF Ride to Cure Diabetes. Moira more recently became involved in that organization and completed a grueling ride with Lauren last year.
What’s it like to attend a diabetes conference? What goes on, who can you meet and is it worth it? Stacey traveled to Friends for Life in Falls Church, Virginia this past April to try to give you the sense of being there. She speaks to organizers, speakers, kids and parents who attend, even vendors to find out why they travel to conferences and what they get out of it. Guests include: Children with Diabetes Founder Jeff Hitchcock, Keynote speaker Dr. Kenneth Moritsugu, former acting Surgeon General and diagnosed with type 1 at age 55, Tweens & Teens attending the conference and their parents, Harold Sanco who gets the kids moving with fun exercise and activity programs, Friends for Life Organizer Laura Billetdeaux, Animas Senior Territory Manager Suzanne Hollis, TrialNet's Karen Riley & Falls Church Mayor David Tarter who has a child with type 1 and was excited to find the conference was coming to his town.
Happy Mother's Day! This week, Stacey looks at motherhood &diabetes from two inspiring perspectives. Karla Reed is the motherof NASCAR driver Ryan Reed, diagnosed with type 1 when he was 17years old. Karla talks about what she's learned in the five yearssince - a time when Ryan moved across the country to start hisNASCAR career, became a spokesperson for the American DiabetesAssociation and got his first big Xfinity win. Ginger Vieira is amom with type 1 diabetes; her little girl Lucy is 18 months old.Ginger shares her experience of a carefully planned and managedpregnancy. She's now teaming up with her diabetes educator, friend,and fellow T1D mom, Jennifer Smith, to help other women with type 1who want to start a family. Stacey also shares a little bit abouthow a decision her mother made nine years ago, influenced the wayshe and her husband care for and think about her son's T1D.
Stacey talks with Dexcom CEO Kevin Sayer to mark the ten year anniversary of the company's first commercial product sale and to discuss improvements to customer service. Sayer talks about the long hold times and other issues customers have noticed recently, and explains why the recent growth of the company, along with a product recall, made those difficulties worse. We find out what Dexcom is doing to improve service and make the overall customer experience better. Sayer also answers questions about Android capability for Share and talks about other improvements coming to the system's receiver and inserter.
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Howard Look formed Tidepool after his daughter was diagnosed with type 1 in 2011 and, as a self-described "geek-dad" he was frustrated with the lack of access to her diabetes data. Tidepool is a platform for diabetes information and the apps that use it. It includes an uploader to get information off of devices like CGMs and insulin pumps and view them in a clear and accessible way. Look talks about the other features of Tidepool which help you make sense of what you're seeing. He also shares how his family uses Tidepool to make their diabetes management easier. Tidepool was honored at the White House last year and Howard Look shares his experience of being asked to sit on a panel with President Obama in February. Stacey also talks to a North Carolina father participating in the American Diabetes Association's' Tour de Cure. He got involved because his daughter's best friend has T1D and she wanted her friend to have a sleepover. The family got educated about type 1 and their involvement took off from there.