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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Now displaying: 2019
Jul 16, 2019

It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that’s when some unexpected good things started happening.

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Jim tells us the story – it was July last year – and explains how Disney  and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic.

Find out about Touring Plans here

Find out about the Lines app here

Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice)

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In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. 

And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone.

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Show open: What's on this week?

1:30 Welcome - Stacey talks about the Friends for Life Conferences and announces a limited presale of her book! Find out more here (and use promo code "earlybird" until July 23)

7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World

29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp.

35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here

A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. 

Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states.


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Jul 9, 2019

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

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Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

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This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)

Jul 2, 2019

Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she’s an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. 

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In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas.

Click to watch "Diabetic Like You (Sucker Parody)"

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And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark.

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00:00 Tease/Open: What's this week's show about?

1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer.

5:45 Stacey's interview with Rachel Price

32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody

36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. 

Learn about Inspired by Isabella 

Follow Mike's journey on the AT

41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned!

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android   

Jun 27, 2019

Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. 

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Learn more about the ADA Dietary Guidelines for 2019 

This is the full interview with Hope. An excerpt ran in the previous episode. All of our "Extra" interviews like this will be available as transcriptions! To READ the podcast, make sure you're signed up for the newsletter. Each month you'll received an easy to read version of the show!

Sign up for the weekly newsletter & get your free transcriptions


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

Jun 25, 2019

Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. 

Join the Diabetes Connections Facebook Group! 

Learn more about the ADA Dietary Guidelines for 2019 

In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think.

Find Out About Automated Insulin Delivery, the book by Dana Lewis

And Tell Me Something Good: a small act at a Starbucks makes a big difference.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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00:00 Open/Tease - What's on the show this week?

1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you. 

Sign up for our newsletter here

6:00 Interview with Hope Warshaw, RD, CDE

35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis

40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way).

45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry.
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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

Jun 18, 2019

This week – Dexcom’s CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year. 

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Sayer also shares news about Dexcom’s role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we’ll stop seeing the G4.

Learn more about the top research from ADA 2019 

In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust. 

And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years.


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00:00 Open: What's on the Show This Week?

1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more. 

5:45 Interview with Dexcom CEO Kevin Sayer

42:45 Community Connection all about DiabetesWise

45:35 TMSG: TrialNet's Teplizumab prevention study 


Previous interviews with Dexcom:

CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors

CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions

CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration

CEO Kevin Sayer - March 2018 Dexcom G6 Approved

Former CTO Jorge Valdes- June 2017 Apple watch integration discussion, G5 for Android, Dexcom company discussion 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 


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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

Jun 11, 2019

Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info.

Join the Diabetes Connections Facebook Group! 

Learn about Buzzy and Shot Blocker (pain reduction in shots)

MedT's iPort Advance (what Stacey calls an inset for shots)

Previous episode on Getting Diabetes Gear to Stick in the Summer

In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY?

FDA Warning RE: DIY devices

Read Katie DiSimone's post about the FDA and DIY

And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest!

Taylor Adams Summits Mt. Everest with T1D

History of T1Ds on Mt Everest

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:00 Show Open -What's on this week?

1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming! 

Sign Up For the Newsletter Here

5:10 Ask the D-Moms

38:00 Community Connection: DIY & the FDA

42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

 

Jun 4, 2019

With Father’s Day coming up we’re taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. 

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Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind.

In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We’ll find out about Project 50 in 50 and how you can get involved.

Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. 

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00:00 Show open and "tease" - what's on the show this week?

2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 

4:50 Interview with Mark & Alan of Diabetes Dads

39:00 Stacey talks about diabetes camp (continuing the conversation from the interview)

41:00 Community Connection: Project 50 in 50

45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

May 30, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. 

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Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode.

Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about.

Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. 

To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

May 28, 2019

Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. 

Join the Diabetes Connections Facebook Group! 

Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following.

In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat.

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And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn’t have type 1 but supports her friends who do.

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1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago!

6:55 Interview with Gary Scheiner

36:00 Community Connection: Diabetes Camps for Grownups

40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure.  And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. 

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

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