JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.
Join the Diabetes Connections Facebook Group!
Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.
Scroll to the bottom to see a list of items/products mentioned during this episode.
In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group.
Sign up for our newsletter here
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
-----
Show Open/Tease
Stacey Welcome - Find out more about Project 50 in 50
JDRF Children's Congress Greater Western Carolinas Chapter Delegates
Community Connection Getting Gear to Stick:
TMSG:
-----
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.
I expect to edit & add to this list in the weeks and months to come. Hope it helps!
Sticky Wipes
These make the skin a bit tacky in order to give the material you put on top a better hold.
Skin Tac wipe or liquid
IV Prep wipe
Mastisol liquid
Stoma Care wipe w/aloe
Hollister skin gel
ReliaMed wipe
Tapes/Patches
Tegaderm film dressing
Opsite Flexifix transparent film
Hypafix dressing tape
RockaDex Dexcom patches
GrifGrips adhesive patch
Waterproof Bandaid
Wraps/Bands
Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)
Vet Wrap
Athletic Sleeves
Rash Guard/Swim shirt (cut to fit)
Misc.
EK Tools Tag Punch Classic (Dexcom-sized hole punch)
Dexcom & Libre Rash (Public Facebook Group)
Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she’s an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans.
Join the Diabetes Connections Facebook Group!
In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas.
Click to watch "Diabetic Like You (Sucker Parody)"
Sign up for our newsletter here
And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark.
---
00:00 Tease/Open: What's this week's show about?
1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer.
5:45 Stacey's interview with Rachel Price
32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody
36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college.
Learn about Inspired by Isabella
Follow Mike's journey on the AT
41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned!
-----
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels.
Join the Diabetes Connections Facebook Group!
Learn more about the ADA Dietary Guidelines for 2019
This is the full interview with Hope. An excerpt ran in the previous episode. All of our "Extra" interviews like this will be available as transcriptions! To READ the podcast, make sure you're signed up for the newsletter. Each month you'll received an easy to read version of the show!
Sign up for the weekly newsletter & get your free transcriptions
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels.
Join the Diabetes Connections Facebook Group!
Learn more about the ADA Dietary Guidelines for 2019
In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think.
Find Out About Automated Insulin Delivery, the book by Dana Lewis
And Tell Me Something Good: a small act at a Starbucks makes a big difference.
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
-----
00:00 Open/Tease - What's on the show this week?
1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you.
Sign up for our newsletter here
6:00 Interview with Hope Warshaw, RD, CDE
35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis
40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way).
45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry.
-----
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
This week – Dexcom’s CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year.
Join the Diabetes Connections Facebook Group!
Sayer also shares news about Dexcom’s role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we’ll stop seeing the G4.
Learn more about the top research from ADA 2019
In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust.
And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years.
-----
00:00 Open: What's on the Show This Week?
1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more.
5:45 Interview with Dexcom CEO Kevin Sayer
42:45 Community Connection all about DiabetesWise
45:35 TMSG: TrialNet's Teplizumab prevention study
Previous interviews with Dexcom:
CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors
CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions
CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration
CEO Kevin Sayer - March 2018 Dexcom G6 Approved
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info.
Join the Diabetes Connections Facebook Group!
Learn about Buzzy and Shot Blocker (pain reduction in shots)
MedT's iPort Advance (what Stacey calls an inset for shots)
Previous episode on Getting Diabetes Gear to Stick in the Summer
In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY?
Read Katie DiSimone's post about the FDA and DIY
And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest!
Taylor Adams Summits Mt. Everest with T1D
--
:00 Show Open -What's on this week?
1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming!
Sign Up For the Newsletter Here
5:10 Ask the D-Moms
38:00 Community Connection: DIY & the FDA
42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest
-----
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
With Father’s Day coming up we’re taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes.
Join the Diabetes Connections Facebook Group!
Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind.
In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We’ll find out about Project 50 in 50 and how you can get involved.
Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation.
-----
00:00 Show open and "tease" - what's on the show this week?
2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology.
4:50 Interview with Mark & Alan of Diabetes Dads
39:00 Stacey talks about diabetes camp (continuing the conversation from the interview)
41:00 Community Connection: Project 50 in 50
45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea.
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice.
Join the Diabetes Connections Facebook Group!
Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode.
Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about.
Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C.
To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States.
Join the Diabetes Connections Facebook Group!
Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following.
In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat.
Sign up for our newsletter here
And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn’t have type 1 but supports her friends who do.
-----
1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago!
6:55 Interview with Gary Scheiner
36:00 Community Connection: Diabetes Camps for Grownups
40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure. And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more.
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools.
Join the Diabetes Connections Facebook Group!
In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years!
Sign up for our newsletter here
And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference.
-----
00:00 Show Open - What's going on this week?!
1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming!
5:15 Interview with Kerri Sparling and her mom, Debbe
40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM.
55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute
Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android