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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Now displaying: 2019
May 21, 2019

For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. 

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In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years!

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And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference.

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00:00 Show Open - What's going on this week?!

1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming!

5:15 Interview with Kerri Sparling and her mom, Debbe

40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM.

55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute 


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May 16, 2019

Steel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie’s release.

The movie has become a touchstone and a bit of a hot spot for  women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister’s death then the blockbuster movie.

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Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids.

Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced.

Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children.

Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

 

Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same)
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May 14, 2019

Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. 

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Moira shares what her medical crisis has taught her about diabetes.

Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US.

More info on the Caravan here

Newsweek article here

Previous interview with Lija about traveling the world with T1D

Previous interview with Quinn

And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley!

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2:00 Stacey Welcome

5:20 "Dear D-Moms" Stacey & Moira answer your questions

51:30 Community Connection: Caravan to Canada 

1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation!


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May 7, 2019

You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he’s lived with since he was 13.

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It's a painful skin condition called Hidradenitis Suppurativa or HS.  It’s not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we’ll also have some fun talking about American Idol.

Check out Jackson's TedX Talk here

Here's his American Idol Audition

Information on the Auto-Immune Protocol Diet Jackson mentions

Plus.. you’ll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we’ve seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. 

More on untethered with Dr. Steve Edelman

Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more.

And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community.

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1:30 Stacey welcome - she shares some of Benny's progress

4:00 Interview with Jackson Gillies

30:00 Stacey interviews Benny 

44:30 Stacey talks in more detail about the untethered regimen

50:51 TMSG

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Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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May 2, 2019

A Diabetes Connections Extra! We take a deep dive into low blood sugar with a frank talk about what hypoglycemia means, what the dangers are, how to treat and more

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This is the extended, full version of our conversation about lows. As with all of our "Extra" episodes, an excerpt ran in the episode just before the this one. Look for Extras the last week of each month.

Stacey talks to Shannon Johnson, who was diagnosed with LADA in her early 20s.  Shannon is also a CDE and a pump and CGM trainer.

Low blood sugar basics (JDRF)

Low blood sugar info (ADA)

 

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 

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Apr 30, 2019

This week we take a deep dive into low blood sugar. A frank talk about what hypoglycemia means.. what the dangers are, how to treat and more.

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Stacey talks to Shannon Johnson, a CDE who lives with diabetes herself. Shannon was diagnosed with LADA in hear early 20s and she's now a Certified Diabetes Educator and trains her patients on pumps and CGMs.

Plus, we’ll find out about the TCOYD conference – the first one for people with diabetes and not just medical professionals. Taking Control of Your Diabetes is marking 25 years. Stacey talks with founder Dr. Steve Edleman who was diagnosed as a teen.

And in Tell Me Something Good - huge news from the DIY community. You can now Loop with Omnipod.

Find out about the Open Omni project

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1:45 Stacey welcome - her daughter is graduating high school soon, she's going to two conferences in May: TCOYD in Raleigh and Take Control of Your Diabetes in Orlando. 

7:30 Interview with Shannon Johnson, CDE

32:00 Community Connection with Dr. Steve Edelman, TCOYD Founder

46:00 TMSG: Omnipod Loop

52:25 Stacey continues her thoughts about the Hulk and diabetes after seeing Avengers Endgame (very mild spoilers)


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
-----

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Click here for iPhone      Click here for Android  

 

Apr 23, 2019

It's hard to believe, but a natural disaster was the spark to bring a popular diabetes device to the US. A Frio is a handy little way to keep your insulin cool. Dan Katzki was diagnosed with type 1 as an adult an in 1989 – during the San Francisco earth quake – he lost power. 

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Not wanting to go through that anxiety again, Dan and his wife Lisa found the Frio product and brought it to the US. How it was invented is another great story.

Our Community Connection is all about a virtual conference coming up in May. Find out about the Diabetes Empowerment Summit - the conference you can attend in your pajamas.

And Tell Me Something Good includes a huge milestone for a diabetes advocate we’ve spoke to before. 1000 blog posts for Renza Scibilia who's also marking her 21st year with diabetes.

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1:50 Welcome: Stacey shares how the Avengers movie coming out this weeks means a lot to her family. In fact, Marvel has even helped with diabetes. 

7:00 Interview with Dan and Lisa Katzki

39:00 Community Connection: The Diabetes Empowerment Summit

42:00 Tell Me Something Good: Renza Scibilia marks 21 years with type 1 and 1000 blog posts! Plus, Julia shares how she's (in her words) "graduated from the breast surgeon" and what that means to her.

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

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Apr 16, 2019

This week Stacey talks to renowned researcher, long time pediatric endocrinologist and all around good guy Dr Bruce Buckingham. He decided to become an endo after experiencing diabetes camp early in his residency, more than 50 years ago. 

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Dr. Buckingham tells Stacey he put his first patient on an insulin pump during a clinical trial in 1979! He was principal investigator of the Medtronic MiniMed 670G at Stanford University and he shares his reaction to a recent study that showed some people are struggling with this first commercially available hybrid closed loop.

In our Community Connection this week, an important – and if I’m being honest – a bit of an awkward conversation about race. Comedian Chelcie Rice and I talk about how to get more people of color at diabetes events. He’s great.. I’m the awkward one.

Good info from an event last fall: Diabetics on the Margin (includes links to more information and more people continuing the conversation about people of color living with diabetes. 

Our Tell Me Something Good this week.. Beyond Type 1 makes it the Webby awards and some great T1D kids speak up about how much diabetes camp means to them.

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
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1:50 Stacey Welcome

7:00 Interview with Dr. Bruce Buckingham

41:30 Interview with Chelcie Rice

58:00 Tell Me Something Good


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
-----
Sign up for our newsletter here
Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

Apr 9, 2019

Ask the D-Moms is back! Moira McCarthy and Stacey answer your questions about explaining diabetes to others without creating fear. They weigh in on offering incentives for "good" numbers and give concrete tips about handling burnout.

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Plus.. Community Connection with a campaign to treat someone to a great meal while helping JDRF and in our Tell Me Something Good a great roundup of milestones and a second American Ninja Warrior contestant with T1D this year!!

Find out more about Texas Roadhouse / JDRF Gift Cards

Follow Type Zero Ninja on Instagram

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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2:00 Stacey Welcome

3:30 Stacey talks about the reaction to the recent Ketone episode - specifically the advice around the Keto-diet.

7:00 Moira & Stacey Dear D-Moms Segment

45:30 Community Connection: JDRF & Texas Roadhouse teaming up 

47:30 Tell Me Something Good: Christina Martin is Type Zero Ninja - along with Colt Scott she's the second person with T1D who'll be competing on American Ninja Warrior this year. 

52:15 Stacey shares how diabetes behaved (or didn't) on their recent trip to the West Coast

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android  

Apr 2, 2019

This week, meet Laurian Lane, a labor and delivery nurse now raising three children of her own. Laurian was diagnosed with type one diabetes in 8th grade. When she was older, she began babysitting for Stacey's family!

You'll hear Laurian’s perspective as a nurse, a sitter and now a mom with type 1. She has great advice for parents (and parents-to-be).

In our Community Connection this week, Stacey talks to Susan Sloane, the author of Sweet Genes: Finding a Balance Living with Diabetes. It's their family's story - Susan's two sons were diagnosed with type 1 back in the 1980s and both now work in healthcare.

And in our Tell Me Something Good segment.. diabetes comes to your Xbox and it’s T1D day at the Georgia State Capitol.

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1:30 Stacey Welcome, she talks about Children with Diabetes Friends for Life

4:10 Interview with Laurian Lane 

45:30 Community Connection interview with Susan Sloane

1:07:00 Tell Me Something Good: Get your own diabetes-tech avatar for the Xbox and learn more about T1D Day at the Georgia State Capitol.


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 


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