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Kelly Kunik was 8 years old when she was diagnosed on October 31, 1977. 40 years later, she is a thriving advocate, humorist and blogger (check out her site, Diabetesaliciousness). And she hasn't missed a Halloween since. Kelly shares her story - quite a few people in her family have type 1 – and gives great advice for all of us. You can also learn more about Kelly at I Wish People Knew That Diabetes....
Shoptalk this week with two companies trying to make diabetes look better. Stacey talks to Gretchen Otte from Myabetic & and Katie Larsen from Pocket Innerwear.
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3:00 Stacey talks about Halloween, T1D and her family
8:00 Interview with Kelly Kunik
45:30 Shoptalk with Myabetic
49:40 Shoptalk with Pocket Innerwear
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Weston Nordgren is the Vice President of the Nightscout Foundation, and Community Liaison for CGM in the Cloud worldwide. Behind those titles is quite a story. We talk to Wes about his son’s diagnosis as an infant, their family's journey to find solutions and the power of the #WeAreNotWaiting community.
Wes recently represented the CGM in the Cloud Facebook group at an exclusive international Facebook conference. He shares what he learned there and talks about his son's experience with Looping and on the new Medtronic hybrid closed loop pump. We also mention OpenAPS.
In our shoptalk segment, no more chalky glucose tabs? Chris Angell says he needed something better to treat his lows, so he created GlucoLift.
You'll also hear a clip of Polaroid from Truck Stop Honey's debut album. It's a very personal story and song from previous guest Amanda Jo.
Ross Baker is another previous guest, Stacey calls him T1D's Marathon Man. He is set to run in the Maui Marathon on October 15th, completing an incredible mission of running a marathon in every US state and Washington DC.
Find out more about Animas and their message to customers as they exit the insulin pump business.
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3:30 Stacey talks about Truck Stop Honey, clip of Polaroid
5:30 Animas/One Touch mention
7:00 Stacey talks about Ross Baker & the Maui Marathon
10:00 Interview with Weston Nordgren of Nightscout/CGM in the Cloud
1:01:30 Shoptalk with Chris Angell of GlucoLift
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As always, thanks for listening!!
#Insulin4All is a campaign to bring attention to, and do something about, the high price of insulin. Stacey talks with T1International's founder and director Elizabeth Rowley about what the organization is trying to do and how we can all get involved.
A demonstration is planned in front of Eli Lilly and Company international corporate headquarters in downtown Indianapolis, Indiana Saturday, September 9th at 1-3pm. There's also an online day of action on September 8th.
Find out more about the movement here.
Join the #Insulin4All event Facebook group
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As always, thanks for listening!!
Diabetes Forecast Magazine names their People to Know for 2017. Modeled after Time Magazine’s top 100, it’s all about finding the movers shakers and game changers in the diabetes world. On the list? Your host, Stacey Simms!
You'll hear from Diabetes Forecast Editor Kelly Rawlings, who shares how this special issue comes together. Kelly also talks about how she balances having type 1 for more than 40 years and working in the diabetes field.
Stacey is honored to be part of this incredible list. She was interviewed for the issue by radio show host Jonathan Shuffield. Listen to their interview and then hear why Jonathan kept his type 2 diagnosis to himself for a very long time.
Time codes:
9:00 Kelly Rawlings, Diabetes Forecast Editor
31:00 Jonathan Shuffield interviews Stacey
56:30 Shuffield shares his story
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Diabetes Connections and Stacey are nominated for a podcast award! Please add your endorsement to the WEGO Health Awards
Get the App and listen to Diabetes Connections wherever you go!
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Sign up for our newsletter here
As always, thanks for listening!!
After ten weeks and more than 4000 miles, 20 riders with type 1 diabetes completed their epic journey from New York to California. In this episode, hear the heart-pounding and emotional Bike Beyond finish and listen to the man who started it all talk about what the event has meant to him. We also catch up with several riders during a rest day a few days before the finish. Those interviews took place while they were relaxing in a hot tub (a first for our show)!
Stacey also talks about the great people behind the Real Life Diabetes Podcast and shares events she's traveling to in the next few weeks.
Find out more about supporting Bike Beyond so that Beyond Type 1 can continue to fund diabetes programs (listed here)
Time Codes:
8:30 Bike Beyond finish line and front tire "dip"
12:30 Walt Drennan speaks about finally feeling "normal."
Six Bike Beyond riders talk about the trip:
18:15 Perri Silverheart
22:00 Abbey Brau
29:30 Matt Swain
34:50 Sid Sharma
39:00 Cassidy Robinson
45:30 Jesse Lavine
Diabetes Connections and Stacey are nominated for a podcast award! Please add your endorsement to the WEGO Health Awards
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Sign up for our newsletter here
As always, thanks for listening!!
This summer, some diabetes camps have had a few special visitors. American Idol’s Crystal Bowersox and Olympic Skier Kris Freeman have been talking to kids about following their dreams while living with type 1 diabetes. It's part of the Lilly Camp Care Package which provides scholarships, education, ambassadors and insulin to diabetes camps.
Kris Freeman is hoping to make the Olympic Ski Team for the 5th time next year. He was told at diagnosis that he needed to give up his Olympic dreams. Instead, he's on track to appear at his fifth Olympic games next year.
Crystal Bowersox was the runner up in American Idol in 2010, the 9th season of the show. Just out with a new album, she talks about why she comes back to the Friends for Life Conference and what she gets out of sharing her story with kids and adults with type 1.
We also profile Bike Beyond rider Jesse Lavine, talking food, college and why he decided to jump into this cross country adventure.
Plus, information about back to school:
Register for the ADA Safe at School Webinar August 10th
Beyond Type 1 Back to School Info
Request a JDRF Back to School Toolkit
We need your help! Diabetes Connections and Stacey are nominated for a podcast award! Please at your endorsement to the WEGO Health Awards
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Sign up for our newsletter here
As always, thanks for listening!!
Every two years JDRF brings 150 children to Washington DC to tell their stories to members of Congress. This week, you'll hear how Children's Congress works, who attends and what this event means for families who participate, even years later. There's so much going on in this episode, we broke it down by time code below!
We also continue our look at Bike Beyond, an epic cross country adventure from Beyond Type 1. 20 riders with type 1 diabetes traveling from New York to California all summer long.
5:10 Silvi Pold, diagnosed type 1 at age 8 is the social media and activities coordinator for Bike Beyond. Silvi shares why, as someone who loves outdoor adventure, even she thought a team of T1D bikers riding cross country was an "audacious" goal.
21:30 Alisa Norris, Chief Marketing and Communications Office at JDRF and a mother of two T1D sons explains how JDRF Children's Congress got started and what happens during the 3 day event.
36:00 Brec Bassinger is best known for the title role in Nickelodeon's "Bella and the Bulldogs." She's also starred in TV's "The Goldbergs," "School of Rock," and co-stars in the upcoming feature movie "Status Update." Brec is attending JDRF CC as a special guest this year. She talks about what helped her pursue her dream of acting after a T1D diagnosis at age 8. Stacey's son Benny sits in on the interview - he and Brec swap some Nick Jonas stories!
55:30 Lauren Stanford attended JDRF CC at age 11 as a delegate and again two years later as Kid Chair. Lauren shares how much the experience meant to her then and how it's influenced her as she pursued a career in Washington, DC.
We need your help! Diabetes Connections and Stacey are nominated for some podcast awards! Please check them out and vote:
People's Choice Podcast Awards (voting closes 7/31)
Get the App and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Sign up for our newsletter here
As always, thanks for listening!!
This week we find out all about a new reality TV show called Reversed. It premieres July 18th on Discovery Life Channel featuring people with type 1 and type 2 diabetes. The brainchild is producer & host Charles Mattocks and he’s well aware that the name is raising eyebrows.
Stacey talks to Charles about the show, his opinions about the diabetes community and healthcare providers/pharmaceutical companies. He talks about why that's already rubbed some people the wrong way and shares some of the tough-love methods you'll see on the show.
Plus, week six of our coverage of Bike Beyond! 20 riders, all with type 1, heading from NY to California. This week, you'll hear from Amanda Oberski.. who at first.. wasn’t a fan of the idea of a cross country ride. In fact, she thought it sounded horrible!
And is that diet soda really diet? This article from MySugr gave Stacey the idea to check once and for all. She'll share how it really helped on a recent trip to Disney World.
Get the App and listen to Diabetes Connections wherever you go!
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Sign up for our newsletter here
As always, thanks for listening!!
A bonus episode this week to get the word out about Banting's Ghost. Stephen Richert is a photographer and film maker who was diagnosed with type 1 at age 16. His website and project Living Vertical is a way to document his adventures and share his family's story. Now, Stephen is working on a new project: documenting the insulin access crisis in America.
Named after Sir Frederick Banting, one of the researchers who discovered insulin in 1923 and sold his share of the patent for $1, Banting's Ghost is a way to document the people who are struggling. Stephen is looking for funding - you can learn more and donate here.
The deadline for the first phase of funding is June 30th, which is why we're pushing out this bonus episode. If you’re hearing this episode after June 30th, please check out the links anyway to stay up to date with the project and how you may still be able to help.
Get the App and listen to Diabetes Connections wherever you go!
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Sign up for our newsletter here
As always, thanks for listening!!
This summer, 20 people with type 1 diabetes will make an incredible journey. From June 3 to August 11, Team Bike Beyond is crossing the USA, cycling from New York to California. This week, meet the man who asked Beyond Type 1 to take a chance on the event, and the woman who said yes.
Stacey talks with cyclist Walt Drennan and Beyond Type 1 CEO Sarah Lucas about how the idea for the trip came about, the work that went into launching the ride and what they hope to accomplish along the way.
Each week during Bike Beyond, Diabetes Connections will bring you stories from the ride and profile a different cyclist. They're not professionals, just people with type 1 who wanted to take an extraordinary challenge. (There are actually 20 riders and one D-Mom along on this journey).
Stacey also shares a bit about the end of the school year & how the first year of middle school went for her son.
Plus, we talk about the summer diabetes conferences on the calendar like ADA, Friends for Life & AADE.
Get the app and listen to Diabetes Connections wherever you go!
Click here for iPhone Click here for Android
Sign up for our newsletter here
As always, thanks for listening!!