Info

Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
RSS Feed Subscribe in Apple Podcasts
Diabetes Connections with Stacey Simms Type 1 Diabetes
2022
June
May
April
March
February
January


2021
December
November
October
September
August
July
June
May
April
March
February
January


2020
December
November
October
September
August
July
June
May
April
March
February
January


2019
December
November
October
September
August
July
June
May
April
March
February
January


2018
December
November
October
September
August
July
June
May
April
March
February
January


2017
December
November
October
September
August
July
June
May
April
March
February
January


2016
December
November
October
September
August
July
June
May
April
March
February
January


2015
December
November
October
September
August
July
June
May


Categories

All Episodes
Archives
Categories
Now displaying: October, 2019
Oct 31, 2019

This week, a deep dive into mental health and diabetes. We talk about burnout, depression and feeling like a burden to others. Allison Nimlos was diagnosed with type 1 at age 8. She is a licensed therapist – in fact her social media handle is The Diabetic Therapist and she's a CDE in training.

The World's Worst Diabetes Mom is out! Buy Stacey's Book!

Allison talks about the mental toll diabetes can take – something she knows about first hand. This is one of our Extra interviews.. so there will be a longer bonus episode. and it will be available as a transcript.

Join the Diabetes Connections Facebook Group!

In Tell Me Something Good, a message about affordable insulin gets a World Series audience, thanks to a familiar name around here. (watch the video)

Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

Oct 29, 2019

This week, a deep dive into mental health and diabetes. We talk about burnout, depression and feeling like a burden to others. Allison Nimlos was diagnosed with type 1 at age 8. She is a licensed therapist – in fact her social media handle is The Diabetic Therapist and she's a CDE in training.

The World's Worst Diabetes Mom is out! Buy Stacey's Book!

Allison talks about the mental toll diabetes can take – something she knows about first hand. This is one of our Extra interviews.. so there will be a longer bonus episode. and it will be available as a transcript.

Join the Diabetes Connections Facebook Group!

In Tell Me Something Good, a message about affordable insulin gets a World Series audience, thanks to a familiar name around here. (watch the video)

Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

It's Halloween Week! Listen to our "Ask The D-Moms" episode all about trick or treating, costumes and candy

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

Oct 22, 2019

This week.. a frank discussion about the type 1 diabetes community and inclusion. About race and diversity. Actress and model Anita Nicole Brown says people of color are being left behind

Buy Stacey's Book: "The World's Worst Diabetes Mom"

We talk about how to get more voices in the community.. and better representation at conferences and in leadership. We also talk about working on sets and getting booked for acting jobs with type 1.

Join the Diabetes Connections Facebook Group!

In Tell Me Something Good.. a bunch of ride and walk milestones to share.

One of our TMSG mentions is Dennis who's been on the show before. We talked about turning 65 with type 1 - Medicare and more.

Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

-----

 

-----

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

Oct 16, 2019

What happens when two huge diabetes organizations decide to work together? We're all about to find out. Stacey talks to the CEOs of JDRF & Beyond Type 1 about their newly announced "alliance."

Buy Stacey's Book - "The World's Worst Diabetes Mom"

JDRF's Aaron Kowalski and Beyond Type 1's Thom Scher join Stacey for a talk about why these groups came together and what that means for the diabetes community.

Join the Diabetes Connections Facebook Group!

More info about the announcement here

Sign up for our newsletter here

-----

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

-----------

Partial transcript of the episode:

Stacey: Can you talk a little bit about the story behind [the alliance]?

Thom: I think that both JDRF and Beyond Type 1 are strong and important in this space. Aaron and I sat down and it was very clear that there were areas of overlap in the middle of the Venn diagram of sorts where we realized that working together, and this sounds a little cheesy, but where it really would be 1+1=3… And the minute we identified that list of things, it just became very clear that we were stronger together on a handful of these initiatives.

 

I also think, and this certainly isn’t something that our organizations were trying to do, but inevitably I think that we, people in the community sometimes feel like they had to pick, and that’s silly. We’re all in this together. We’re all fighting to improve the lives of people impacted by diabetes. I think JDRF and Beyond Type 1 saw that and saw that we were able to really work together and build something robust and official that allows both organizations to now go out and do these things together.

 

Is this a merger? You’ve talked about eliminating some redundancies – can you speak to that?

Aaron: We’re going to stay independent organizations, but it is reducing redundancies and building on what one another do well. From my perspective, when I took on the CEO role of JDRF, I talked to the board about a couple of key things. One is: what is JDRF really good at? I think we’re really good at funding research. We fund more research than anybody but the U.S. government. We’ve been successful at advocacy, and our mission has really been improving lives and curing Type 1 diabetes. Beyond Type 1 has been an incredible force in uniting our community… Beyond Type 1 has engaged with the adult community certainly better than we have.

 

What is the latest from JDRF in terms of pushing for insulin affordability?

Aaron: This is one of our top advocacy issues that we’re dealing with now. I’ve said this multiple times, I’ve testified on the Hill three times on this topic. No one should suffer or die for lack of insulin. And what we have in the United States is a shameful situation. JDRF is fully committed that nobody should have to choose between rent or a car payment or insulin. So we’ve been working on a number of fronts with the payer community, with Congress, looking at people who are under or uninsured, and looking at every remedy possible. I can tell you that working with Beyond Type 1, I think we’re going to be a be able to amplify this message. To me, it’s of course about amplifying the message, but it’s about driving towards solutions.

 

Thom: I’ll build off of that. I think we certainly are looking forward to working with JDRF to be more impactful in this arena of bringing more patient voices into the conversation, certainly at a federal level. I think our perspective at Beyond Type 1 on this is that we need to look for a pragmatic solution. And on top of those pragmatic solutions, we need to be ensuring that we are providing resources every day to people who are in need of insulin. And so some of those pragmatics take the form of actual policy matters be it first dollar coverage or Kevin’s Law. Some of the resource components have to do with ensuring that, for example, people who are uninsured know what assistance programs are available to them, they know how to get to them, they know that with them they will have coverage. There are robust programs in particular for that population. It’s that the barriers to entry are too high. So we’re really committed to building out our advocacy forum of Beyond Type 1 over the course of the next year.

 

This alliance was a big part of that because we now get to work with JDRF, a leading organization on that front, leveraging their expertise and bringing it into our community, and that’s a stepping stone for us to take more meaningful steps.

 

Did you know each other before you started talking about this?

Thom: I consider Aaron a friend, and a colleague, and I love working with him. I don’t think Aaron and I knew each other all that well when we each respectively took over as CEOs, though I certainly knew of Aaron and respected Aaron. I think Aaron and I over series of conversations in person and by phone have definitely gotten closer. I feel really lucky to call Aaron a friend now. I think that certainly informed some of the creation of the alliance. It was Aaron and I being able to really sit down and talk at a high level, everything on the table, how can we work together? That came from a place, at least on my end of [inaudible 00:11:59] Aaron’s vision and a belief that him and I were going to be able to work together and so would our teams. So no, we were not necessarily friends before this, but I certainly consider us friends today.

 

Aaron: Thom came down to the JDRF office in New York City and we sat down and talked, and really, it was quite clear that we were so aligned in where we were trying to take both of these organizations. So we hadn’t met before that and here we are. We took this selfie, and now today in October 2019 I think Thom is a great diabetes friend, and friend just the overall. I always love seeing, we love seeing one another. I mean it’s funny. Diabetes is one of those places I always call it the club that we want no more members of, but you find amazing people who are in this club unfortunately. Thom is just one of those amazing people whose leaned in, he’s just such a joy to work with, and we are going to do amazing things together. I’m just so fortunate that now that we have this bond.

Oct 15, 2019

Erik Douds has big plans for the next few weeks. First, a 100 mile bike ride through Death Valley next week and then the New York City Marathon. Douds says these events take on a new - unexpected layer when you have type 1: it becomes about community.

Buy the Book! The World's Worst Diabetes Mom is on sale now!

Erik is partnering with Scott Johnson on the JDRF Death Valley Ride, we'll talk about how the popular community leader got involved.

Donate to Erik & Scott's JDRF Ride

Plus.. tell me something good! Scholarships and new blogs!

Join the Diabetes Connections Facebook Group!

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

Sign up for our newsletter here


00:00 Show Open: What's on this week

1:20 Stacey Welcome: Stacey is recording on the road from a women's podcasting conference. She talks about Benny's recent injury he's okay - they thought it might be an ACL tear, but it's just a bad knee strain - and what happened with blood sugar. Book update as well! Pre-orders have gone out!

6:20 Snippet of Scott Johnson ride video

8:20 Interview with Erik Douds

41:30 Tell Me Something Good: college scholarships for people with diabetes?

College Diabetes Network list

Beyond Type 1 List

Check out DiabetesMine monthly blog/social media roundups 

45:30 Stacey's on the road! Look at her schedule and request that she come to your event here. 

-----

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

Oct 8, 2019

Halloween doesn't have to be scary for children with type 1 diabetes or their parents. Moira McCarthy & Stacey are back with Ask the DMoms. They answer your questions about all those bags of candy, lows while kids run around the neighborhood, pumps and d-tech under costumes and much more.

Order Stacey's new book - The World's Worst Diabetes Mom

In Tell Me Something Good: A good beat and a follow-up that lets us say yes to the question.. is there a doctor in the house?

Join the Diabetes Connections Facebook Group!

Listen to our previous episode with Kelly Kunik dignosed as a child on Halloween.

Sign up for our newsletter here


00:00 Show Open: What's on this week?

1:40 Stacey welcome: Thanks to Friends for Life Falls Church! The World's Worst Diabetes Mom is available for pre-orders! It will be on Amazon Nov 3

5:20 Ask The D-Moms: Halloween

35:30 Tell Me Something Good: Blindfolded Drummer & Dr. Heather Walker 

38:30 Where's Stacey Going Next?

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

Oct 1, 2019

One Drop made a name for itself with a beautiful design; this summer it became the only diabetes devices in Apple stores. But founder Jeff Dachis says that the mission goes far beyond looking good.

Join the Diabetes Connections Facebook Group!

Jeff explains all that One Drop does and shares his frightening diagnosis story. We also talk about his past as an early internet innovator.

Order Stacey's Book - The World's Worst Diabetes Mom: Real Life Stories of Parenting a Child with Type 1 Diabetes

-----

00:00 What's on this week?

Stacey welcome: Stacey mentions that two episodes ago she profiled Carson Wedding and said that she was the first person to use the DIY Omnipod Loop. As it's hard to determine exactly who's "first" in the DIY crowd (and not really necessary), Stacey corrects that assertion.

Interview with Jeff Dachis

Tell Me Something Good

Stacey shares a story about watching Law & Order with Benny - the episode was an awful one about using insulin in a very weird way.

Sign up for our newsletter here

-----

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
-----

Get the App and listen to Diabetes Connections wherever you go!

Click here for iPhone      Click here for Android

1