At Moms' Night Out Providence, I was part of an Ask Us Anything panel that included Moira McCarthy and Kerri Sparling. We had a lot of fun on this panel and a lot of fun at MNO period. If you’re wondering what this event is all about, I think this panel will give you a lot of insight. It’s serious, and humorous, I hope helpful, and it’s all peer to peer – we’re not doctors.
Moira McCarthy’s daughter, Lauren, was marking 26 years with T1D during this event! Moira is a ski, adventure and travel writer. A JDRF International Volunteer of the Year and author of six books including, “Raising Teens with Diabetes.” Her blog Despite Diabetes helped me a lot and she’s left it up as a resource.
Kerri Sparling is a writer, poet and speaker who has dedicated her life to the power of the patient narrative. Best known for the blog and book, “SixUntilMe,” she is the author of “Balancing Diabetes” and “Rage Bolus and other poems.” Kerri has lived with type 1 for 37 years.
Our next MNO is in Charlotte in February
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
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This week, Mila Clark became a popular advocate for type 2 diabetes after her diagnosis in 2016 But she was actually one of the many adults misdiagnosed – she actually lives with LADA. One of the biggest changes she experienced was how her health care providers treated her, they were much more supportive when they realized she had LADA – also called type 1.5.
Mila is working to reduce the stigma around all types of diabetes. We talk about her advocacy, her Hangry Woman business, the unique patch pump she’s using and a lot more.
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
Find out more about LADA
Our previous episode with Mila here
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Do you know your rights with diabetes? Our guest this week is John Griffin, a trial lawyer with more than 30 years of advocating in and out of the courtroom. He lives with type 2 himself – this is an eye opening and useful conversation.
Griffin served as National Chair of the Board of the American Diabetes Association in 2011, and is the former Chair of the Association’s Legislative and Regulatory Subcommittee.
Also, if you’ve been given a blood glucose meter you probably know how to use it, but do you know how it works? We’ll explain the chemistry going on here
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
More information about how your glucose meter works:
The information explaining Metformin comes from DiaTribe
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Sign up today (no spam we promise)
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It’s In the News, a look at the top stories and headlines from the diabetes community happening now. Top stories this week: Novo Nordisk will discontinue Levemir by the end of 2024, Tandem begins limited launch of software updates that will include Dexcom's G7, Beta Bionics iLet pump will be covered until some pharmacy plans, and lots more!
Links and transcript below
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Hello and welcome to Diabetes Connections In the News! I’m Stacey Simms and every other Friday I bring you a short episode with the top diabetes stories and headlines happening now.
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In the news is brought to you by Edgepark simplify your diabetes journey with Edgepark
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This week was World Diabetes Day so there is a LOT going on..
Our top story is
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Novo Nordisk said on Wednesday it would discontinue its long-acting insulin Levemir in the United States, citing manufacturing constraints, reduced patient access and available alternatives.
The Danish drugmaker said supply disruptions would start in mid-January, followed by discontinuation of the Levemir injection pen in April and of Levemir vials by the end of 2024.
Novo has another long-acting insulin, Tresiba, on the market and says quote - "global manufacturing constraints, significant formulary losses impacting patient access effective in January 2024, and the availability of alternative options in the U.S. market" are key factors in the decision.
The announcement comes eight months after Novo said it would cut U.S. list prices for several of its insulin products next year, including a 65% reduction in the list price of Levemir. Novo, which overtook LVMH (LVMH.PA) as Europe's most valuable listed company this year, posted record operating profit for the third quarter, with sales of its obesity drug Wegovy reaching $1.36 billion, up 28% from the previous quarter.
https://www.reuters.com/business/healthcare-pharmaceuticals/novo-nordisk-discontinue-levemir-insulin-us-market-2023-11-08/
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Big news from Tandem Diabetes this week – first, their Control IQ algorithm gets FDA approval for children as young as two years old. the technology’s original 2019 clearance limited its use to those aged 6 and older.
And.. they are officially rolling out the software update that will allow users to connect to either the Dexcom G6 or G7 CGM. If you’re in the limited launch you got an email this week telling you the next steps – wider release is expected gradually in the first part of 2024. Integration with Abbot’s FreeStyle Libre is expected very soon as well – which would mean Tandem’s tslim x2 and Mobi pumps would be compatible with three CGMs. Full disclosure: there wasn’t a media release that I received on this, but my son is in the limited launch group so we got the email.
https://www.fiercebiotech.com/medtech/tandem-diabetes-care-cruises-fda-ok-toddler-use-automated-insulin-delivery-algorithm
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Beta Bionics iLet pump and its supplies are now covered as part of some pharmacy benefits - Express Scripts added it to its national formulary list. Historically, insulin pumps fall under the durable medical equipment (DME) insurance benefit. Usually pharmacy benefits are more flexible with fewer up front costs.
The system uses an adaptive, closed-loop algorithm that initializes with the user’s body weight and requires no additional insulin dosing parameters. The algorithm removes the need to manually adjust insulin pump therapy settings and variables.
iLet simplifies mealtime use by replacing conventional carb counting with its meal announcement feature. This enables users to estimate the amount of carbs in their meal, categorized as “small,” “medium” or “large.” Over time, the algorithm learns to respond to users’ individual insulin needs.
https://www.drugdeliverybusiness.com/beta-bionics-pharmacy-benefit-bionic-pancreas/
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The UK has launched a pioneering study to explore the development of type 1 diabetes in adults which aims to screen 20,000 individuals. Research will enable earlier and safer diagnosis of type 1 diabetes through blood tests. This makes the UK the first country to implement general population screening for type 1 diabetes in both children and adults. The Type 1 Diabetes Risk in Adults (T1DRA) study, launched on World Diabetes Day, seeks to enroll 20,000 adults aged 18 to 70.
Supported by The Leona M. and Harry B. Helmsley Charitable Trust and building on the Diabetes UK-funded Bart’s Oxford Family study (BOX), T1DRA aims to unravel the mysteries of adult-onset type 1 diabetes.
https://www.diabetes.co.uk/news/2023/nov/groundbreaking-study-to-screen-20000-adults-for-type-1-diabetes.html
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The National Institute for Health and Care Excellence (NICE), England’s cost-effectiveness watchdog, has finalized a draft guidance regarding hybrid closed-loop systems, concluding that the technology should be made broadly affordable and accessible to help people with Type 1 diabetes better manage the condition.
In this month’s final draft guidance (PDF), NICE recommended that hybrid closed-loop technology be offered to all people with Type 1 diabetes who are having trouble controlling the condition using their existing devices.
NICE said that it has already devised a five-year rollout plan with the NHS to bring the technology to people with Type 1 diabetes. Hybrid closed-loop systems will be offered first to children, young people, existing insulin pump users and women who are pregnant or planning to become pregnant, after which they’ll be issued to adults who have an average HbA1c reading of at least 7.5%.
https://www.fiercebiotech.com/medtech/nice-recommends-hybrid-closed-loop-systems-type-1-diabetes-prompting-praise-medtronic
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Commercial
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Kyle Banks was diagnosed with type 1 diabetes on November 1, 2015 while performing with the traveling production of Disney’s The Lion King. Performing nightly for sold out audiences across the country was a dream come true, but after experiencing symptoms of the onset of type 1 diabetes, the dream temporarily turned into a nightmare. The symptoms he experienced were typical for the onset of this chronic illness. but with limited knowledge of type 1 diabetes, he had no idea what was occurring or the drastic life change that would soon follow. In 2020, he founded Kyler Cares in partnership with Children’s Hospital New Orleans and has since connected with families from across the country that are living with this disease. Kyler Cares seeks to improve health outcomes for people of color living with diabetes and ensuring families can access the resources and technology available for better management is the route the organization is taking to achieve that goal.
At Kyler Cares we’re working to improve health outcomes for people of color living with diabetes by improving access to diabetes technology, creating connections to education and resources, and fostering community as an added system of support on our journeys.
Kyler Bear & Friends’ T1 Diaries is an eight-part animated series for kids, dedicated to storytelling about life with Type 1 Diabetes. Our series is more than just an educational tool; it’s a reflection of real-life stories and an avenue to strengthen community ties. It’s a vehicle for us to inspire young people to begin laying a foundation of knowledge and self-confidence with management of T1D that will resonate throughout their lives until a cure for the disease is discovered.
By supporting this series with a donation, you will be contributing to a project that not only educates and informs but also offers comfort and a sense of belonging to kids navigating life with T1D. ‘Kyler Bear’s T1 Diaries’ isn’t just a series; it’s a beacon of hope, a source of information, and a testament to the strength found in our amazing T1D community. Join us in bringing these stories to life
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Married At First Sight UK ends this week, but one bride says viewers haven't seen her whole story.
Fans will find out if Tasha Jay, 25, decides to stay with partner Paul Liba on the Channel 4 show.
But Tasha, who has type 1 diabetes, has spoken out about how footage about her condition didn't make the final cut.
While she's "really sad" that it was left out, Tasha's pleased that people are now realising why she behaved in a certain way on the show at times.
Married at First Sight - or MAFS - is a social experiment where experts match complete strangers who try to live as a couple.
Tasha says her wedding day with Paul on the show was a "really beautiful moment" that included her telling Paul about her diabetes and his reaction.
"I got filmed taking my insulin and checking my blood sugar," she tells BBC Newsbeat..
Tasha was diagnosed at aged two and half and says people have asked why that part of her was hidden in the show.
"And I'm like I didn't hide it," she says.
"For whatever reason they haven't shown it, which really upsets me because diabetes is a part of my story."
Tasha believes that, if people had known about her diabetes, it would have changed their perception of certain moments in the show.
At Moms' Night Out Providence, I was part of an Ask Us Anything panel that included Moira McCarthy and Kerri Sparling. We had a lot of fun on this panel and a lot of fun at MNO period. If you’re wondering what this event is all about, I think this panel will give you a lot of insight. It’s serious, and humorous, I hope helpful, and it’s all peer to peer – we’re not doctors.
Moira McCarthy’s daughter, Lauren, was marking 26 years with T1D during this event! Moira is a ski, adventure and travel writer. A JDRF International Volunteer of the Year and author of six books including, “Raising Teens with Diabetes.” Her blog Despite Diabetes helped me a lot and she’s left it up as a resource.
Kerri Sparling is a writer, poet and speaker who has dedicated her life to the power of the patient narrative. Best known for the blog and book, “SixUntilMe,” she is the author of “Balancing Diabetes” and “Rage Bolus and other poems.” Kerri has lived with type 1 for 37 years.
Our next MNO is in Charlotte in February
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
Find out more about Moms' Night Out
Please visit our Sponsors & Partners - they help make the show possible!
Edgepark Medical Supplies
Check out VIVI Cap to protect your insulin from extreme temperatures
Learn more about AG1 from Athletic Greens
Drive research that matters through the T1D Exchange
The best way to keep up with Stacey and the show is by signing up for our weekly newsletter:
Sign up for our newsletter here
Here's where to find us:
Learn more about everything at our home page www.diabetes-connections.com
Reach out with questions or comments: info@diabetes-connections.com
Dr. Mike Natter took a non-traditional path to becoming an endocrinologist, starting out as an art student. But it turns out, the universal language of drawing can help break down barriers
Mike lives with type 1 – he was diagnosed at age 9. This is a wide ranging interview, we talk about his diagnosis at age 9, finishing his medical residency in NYC during the height of COVID, what he learned from his test run with the new Beta Bionics iLet pump, and a lot more.
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
Find out more about Moms' Night Out
Please visit our Sponsors & Partners - they help make the show possible!
Edgepark Medical Supplies
Check out VIVI Cap to protect your insulin from extreme temperatures
Learn more about AG1 from Athletic Greens
Drive research that matters through the T1D Exchange
The best way to keep up with Stacey and the show is by signing up for our weekly newsletter:
Sign up for our newsletter here
Here's where to find us:
Learn more about everything at our home page www.diabetes-connections.com
Reach out with questions or comments: info@diabetes-connections.com
This is the first episode of our new show, Diabetes Connections TYPE 2.
Here's what we're talking about:
What IS an A1C? What you need to know about this all-important number.
My guest is a sports photographer and journalist. We’re going to talk about what it takes to do that job and how he was diagnosed with diabetes after a tough run in with the Texas heat..
And hey this is our first episode – we’ll get to know each other a little bit.
This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
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A1C information from:
and the American Diabetes Assocation
More about the history of Diabetes Awareness Month & World Diabetes Day
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Find out more about Moms' Night Out
Please visit our Sponsors & Partners - they help make the show possible!
Edgepark Medical Supplies
Check out VIVI Cap to protect your insulin from extreme temperatures
Learn more about AG1 from Athletic Greens
Drive research that matters through the T1D Exchange
The best way to keep up with Stacey and the show is by signing up for our weekly newsletter:
Sign up today (no spam we promise)
Here's where to find us:
Learn more about everything at our home page www.diabetes-connections.com
Reach out with questions or comments: info@diabetes-connections.com
It’s In the News, a look at the top stories and headlines from the diabetes community happening now. Top stories this week: a new study looks at pancreatic exocrine-endocrine “crosstalk,” weekly basal for T1D moves forward, a Chinese company gets European approval for its CGM, a look at air pollution as a cause of T2D, lots of info and advocacy for Diabetes Awareness Month including some movies and documentaries.
Links and transcript below
Find out more about Moms' Night Out
Please visit our Sponsors & Partners - they help make the show possible!
Edgepark Medical Supplies
Check out VIVI Cap to protect your insulin from extreme temperatures
Learn more about AG1 from Athletic Greens
Drive research that matters through the T1D Exchange
The best way to keep up with Stacey and the show is by signing up for our weekly newsletter:
Sign up for our newsletter here
Here's where to find us:
Learn more about everything at our home page www.diabetes-connections.com
Reach out with questions or comments: info@diabetes-connections.com
Episode Transcript:
Hello and welcome to Diabetes Connections In the News! I’m Stacey Simms and every other Friday I bring you a short episode with the top diabetes stories and headlines happening now.
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In the news is brought to you by Edgepark simplify your diabetes journey with Edgepark
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It’s Diabetes Awareness Month so you’re going to see a lot of advocacy posts and hear about all types of diabetes and technology and advances. It’s always diabetes awareness month around here, so I’m not going to talk about each and every one of these campaigns.. but I’ll share more on social.
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Our top story this week, In the largest study of its kind, researchers at Vanderbilt University Medical Center have identified unexpected alterations in the exocrine tissues of the pancreas that occur in the two major forms of diabetes, and with aging and obesity.
They’re calling this a report on pancreatic exocrine-endocrine “crosstalk.” I’m not going to do it justice, it’s pretty complex, so please check out the show notes with all the links.
They say their work, published in the journal Diabetes, represents a significant advance in understanding how Type 1 and Type 2 diabetes, alter the digestive enzyme-secreting exocrine portion of the pancreas. Not just the parts that make insulin.
The pancreas has been very difficult to study because it is surrounded by other vital organs, hard to access, and it quickly deteriorates. Pancreas tissue for study must come from deceased donors or fragments of surgical specimens and those are hard to come by. This group says they were able to study an unprecedently large and well-preserved group of tissue samples from 119 donors.
https://news.vumc.org/2023/11/01/pancreas-crosstalk-may-influence-course-of-type-1-and-type-2-diabetes/#:~:text=VUMC%20Reporter-,Pancreas%20%E2%80%9Ccrosstalk%E2%80%9D%20may%20influence%20course%20of%20Type,1%20and%20Type%202%20diabetes&text=In%20the%20largest%20study%20of,and%20with%20aging%20and%20obesity.
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Another promising study about Insulin icodec, a once-weekly basal injection – this time for type 1 diabetes. We’ve been following this for a while and the results of the year-long phase 3 clinical trial are in.
After 26 weeks, once weekly basal looks just about the same as daily basal in terms of overall diabetes control. The group that received daily injections had their A1Cs go down to 7.1, the group that got the weekly basal was at 7.15.
These researchers say it’s very promising, but further analysis of CGM data and real world studies are needed to keep moving forward.
https://www.technologynetworks.com/drug-discovery/news/weekly-insulin-for-type-1-diabetes-has-the-potential-to-be-as-effective-as-daily-regimens-trial-380487
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air pollution raises risk of type 2 diabetes, says a landmark study out of India. This was a seven year study of 12,000 people and showed Inhaling polluted air increases the risk of type 2 diabetes, the first study of its kind in India has found.
When inhaled, PM2.5 particles – which are 30 times thinner than a strand of hair – can enter the bloodstream and cause several respiratory and cardiovascular diseases. India is one of the worst countries in the world for air pollution. These researchers say
“Until now, we had assumed that diet, obesity and physical exercise were some of the factors explaining why urban Indians had higher prevalence of diabetes than rural Indians,” said Dr V Mohan, chairman of the Madras Diabetes Research Foundation and one of the authors of the paper. “This study is an eye-opener because now we have found a new cause for diabetes that is pollution.”
https://www.theguardian.com/global-development/2023/nov/01/air-pollution-raises-risk-of-type-2-diabetes-says-landmark-indian-study-acc
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Time-restricted eating, also known as intermittent fasting, can help people with Type 2 diabetes lose weight and control their blood sugar levels, according to a new study published in JAMA Network Open from researchers at the University of Illinois Chicago.
Participants who ate only during an eight-hour window between noon and 8 p.m. each day actually lost more weight over six months than participants who were instructed to reduce their calorie intake by 25%. Both groups had similar reductions in long-term blood sugar levels, as measured by a test of hemoglobin A1C, which shows blood sugar levels over the past three months.
Senior author Krista Varady said that participants in the time-restricted eating group had an easier time following the regime than those in the calorie-reducing group. The researchers believe this is partly because patients with diabetes are generally told to cut back on calories by their doctors as a first line of defense, so many of these participants likely had already tried — and struggled with — that form of dieting. And while the participants in the time-restricted eating group were not instructed to reduce their calorie intake, they ended up doing so by eating within a fixed window.
Just over half the participants in the study were Black and another 40% were Hispanic. This is notable as diabetes is particularly prevalent among those groups, so having studies that document the success of time-restricted eating for them is particularly useful, the researchers said.
The study was small a
https://today.uic.edu/intermittent-fasting-diabetes-weight-loss/
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New CGM approved in Europe. Sibionics CGM says they have more than 600-thousand users for their GS1 CGM, mostly in hospitals. It’s a 14 day no calibration system with data sharing. They also make a Continuous Ketone Monitoring System(CKM). The company, based in China, says GS1 CGM products will gradually become available for pre-sales in EU countries, the UK, and other European countries.
https://www.prnewswire.com/news-releases/sibionics-achieves-milestone-receiving-ce-mark-for-its-groundbreaking-gs1-continuous-glucose-monitoring-system-301974051.html
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Commercial – Edgepark
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Couple of movie updates for Diabetes Month! We’ve been following Pay or Die since it was in production, and it’s now in selected theaters with a digital release on Paramont Plus coming Nov 14th. All about the high price of insulin – and the personal cost – this release means the movie is eligible for an Oscar nomination for best documentary.
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The short film Type 1 is also available to stream.. you may recall we talked to the writer behind this project is Noah Averbach-Katz, who appeared in Star Trek Discovery. His wife Mary Wiseman has a starring role and the whole Star Trek community got behind this project. The two star in the short movie which explores the barriers to insulin access put in place for diabetics through a Type 1 diabetic and his wife during their desperate search for insulin. It’s presented in partnership with
with T1 International and it’s the film directorial debut of Anthony Rapp, the original Mark in RENT and current star of Star Trek: Discovery.
https://playbill.com/article/watch-anthony-rapp-directed-short-film-type-1
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This is where in the past I’ve talked about what’s coming up next week on the show.. well now we have two shows! In the news will appear in both DC1 and DC2 feeds.. but the weekly interview shows will only occasionally cross over. I’ll try this and see how it goes – next week on DC 1 – Dr. Mike Natter – he’s an adult endo who lives with type 1, he’s also an artist and has a huge following on social media. We’ll find out why – he’s also used the new Beta Bionics iLet pump and lets us know what he thinks about that. Next up for DC 2 – professional golfer Ken Duke talks about his diagnosis and how he manages diabetes on tour.
Join us again soon!