This week's guest is on a mission. Ross Baker wants to run a marathon in every state in the US as well as DC and he is just two states away from meeting that incredible goal. He plans to conquer Alaska & Hawaii later this year. Diagnosed with type 1 at age 19, he was at first told not to run at all, that it would be dangerous for someone with diabetes! He didn’t listen and after running a few races, he felt called to try for something big. This is a story that involves determination, faith and some Bojangles sweet tea.
Stacey also talks about "real people sick" and adjusting basal rates to deal with illness (and mistakes she's made in the past).
Plus, an update on Jack's insulin allergy.
This week, a new campaign to stop a dangerous problem: DKA before a diabetes diagnosis. Beyond Type 1 wants to educate about the signs and symptoms of type 1 diabetes in a new campaign involving pediatricians. Stacey talks to Tom Scher about the group's new multi-state campaign, how doctors are responding to it and what DKA actually is.
Stacey also brings us up to date on how people with type 1 diabetes fared in the brutal Iditarod and 6633 Arctic Ultra races.
Plus, if you're a mom with type 1, Glu needs your help. Hear about a survey for women with T1D who've given birth.
Tom Brobson is JDRF's National Director of Research Investment Opportunities. He was diagnosed with type 1 as an adult and has been involved personally in many artificial pancreas trials, the first of which had him hooked up to a computer in the hospital and not allowed to get up or go anywhere without a healthcare professional by his side. Of course, since then, the trials have included trials with equipment as small as a pump, CGM & smart phone.
Stacey recorded Tom as he gave a presentation at a local JDRF walk kickoff event. He talks about stem cell research, the artificial pancreas project and other advances in diabetes technology. He also talks about approvals and access.
In this episode, Stacey also talks about coughing for pain relief during shots and insertions. Really! We also share the adventures of people with T1D in the Arctic and in Alaska as this episode is released.
Ryan Reed was diagnosed with type 1 diabetes six years ago and was told he'd never race again. At the time, he was moving from California to North Carolina to try to get onto the NASCAR circuit. Instead of giving up, Ryan found a new doctor and got back in the driver's seat. Now a driver on NASCAR's Xfinity circuit, Ryan won at Daytona in February, the same track where he got his first Xfinity win in 2015. Stacey talks to him for this bonus episode at Roush Fenway headquarters in Concord, NC.
Hear more of Ryan's story in this interview from 2016
This week, a conversation about a medical mystery and a family's search for answers. Nine-year-old Jack Smith was diagnosed with type 1 as a toddler, but in the last year he's become allergic to insulin. His mother, Jaclyn, shares their story with Stacey.
About 2% of people with type 1 diabetes have an insulin allergy, but it’s almost always tied to a type of insulin. They are able to switch and can continue dosing without issues. Jack has reacted to every available type of insulin & all methods of injection or infusion.
Note: This interview was taped 2/28/2017, just before Jack was to go back to Duke for a new treatment. As it airs (3/7/17) the first IVIG treatment Jaclyn mentions resulted in some serious side effects, sending Jack to a local hospital. He's recovered and plans are in place to try to prevent those symptoms at the next infusion.