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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Nov 13, 2018

Carl Armato was diagnosed with type 1 as an infant, he’s now the CEO of Novant Health, a large hospital system. But Carl didn’t share his diagnosis with many people – partly because of a reaction he got from a coach in middle school – who cut his playing time when he found out. Now very open about his T1D, Carl has written a book, A Future With Hope, that tells the story of his diagnosis, growing up in the days before home meters and how his family rallied around him. 

Plus, this week marks World Diabetes Day! Ever wondered why the symbol is a blue circle? We’ll explain. 

And Stacey gives a sneak peak of her new project: Club 1921!

 
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1:40 Stacey welcome, talks about recent Facebook issue with podcasts. If you listen via Facebook please consider switching over to a podcast app or the homepage 

6:00 Interview with Novant CEO Carl Armato

57:33 The Blue Circle explained

 

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Nov 5, 2018

Andrew Armstrong was diagnosed with type 1 diabetes in high school, when college scouts were already coming around. He had the unique experience of being recruited by someone who knew exactly what he was going through - one of the coaches he met had a daughter with T1D. 

Andrew is now in his third year at SU and linebacker coach Brian Ward still supports him, as does Athletic Trainer Tim Pike who lives with type 1. Andrew shares his story plus tips and advice for student athletes.

We taped this episode in front of JDRF families at Syracuse University. They asked Andrew questions and then Stacey put the kids in front of the microphone. 

And, this diabetes awareness month, Stacey takes a moment to talk about Project Blue November, a clearinghouse for online diabetes news, events and inspiration. 

 
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1:50 Stacey welcome

5:00 Interview with Andrew Armstrong

Interview with JDRF CNY Ambassadors:

32:00 MP 

34:30 Bella

37:30 Logan 

Hockey Fights T1D

40:00 Amie 

51:00 Project Blue November

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Nov 1, 2018

This bonus episode is about running, community and finding a way to make a difference. It's a great way kick off Diabetes Awareness Month. 

Stacey worked with Tammy Lowry in her previous job at a radio station. In 2015? Tammy's son Jackson was diagnosed with type 1, just a few weeks before they were both set to run a half marathon to benefit children's cancer research. Jackson's diagnosis took him out of that race, but it led to bigger goals.

You can read about that first year here.

Read about Tammy & Jackson now.

Learn more about the Isabella Santos Foundation

 
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Oct 30, 2018

Stacey talks to Jen Block from Bigfoot Biomedical with a look at why they plan to be more than a pump company, offering help navigating healthcare and a subscription service. Jen is the VP of Medical and Clinical Affairs. She was diagnosed with type 1 her sophomore year in college, during a cross country road trip. Now a Nurse Practitioner and Certified Diabetes Educator, she shares her story and details about Bigfoot.

In our Know Better Segment, one of the very first studies about LADA – sometimes called type 1.5. We’ll tell you what researchers learned.

And Stacey shares a story about a recent wedding where she made one T1D friend and embarrassed herself trying to track down another.  


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1:40 Stacey Welcome

4:50 Interview with Bigfoot's Jen Block

49:30 LADA study

52:30 Stacey doesn't have diabetes radar but she is very embarrassing when she thinks she does..  

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Oct 23, 2018

Once called deliberately non-compliant, this week's guest is all about the importance of language when it comes to diabetes. Renza Scibilia has some strong opinions about why words really matter.

We’ll talk more about her non compliance – it has to do with her Looping, using one of the do it yourself options - and about her diagnosis as a young adult. Plus, information from Diabetes Australia and The Grumpy Pumper

In our Community Connections this week, the Type 1 Renegade Run is making noise in the Northeast. The event this past weekend marks the 7th year of this obstacle course and block party.

And a closer look at keeping insulin at the right temperature from the pharmacy to your fridge. JDRF, ADA & Helmsley Trust are teaming up to study this issue. 

Did you see Chris Ruden pop up in the NBC Titan Games promo?! Here's our interview with the T1D body builder from last year.

 
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1:30 Stacey Welcome - Syracuse and DC round ups, looking ahead to the DiabetesMine Summit

4:00 Interview with Renza Scibilia

39:40 Interview with Renegade Run's Tyson Sunnerberg

52:00 Know Better: insulin study

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Oct 16, 2018

Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here.

Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry. 

Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure!

Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies.


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1:30 Stacey welcome - information about the podcast on YouTube

5:15 Interview with Darrell Greene

49:00 Information on Lilly's faster insulin - Pronto Studies

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Oct 9, 2018

JDRF’s Chief Mission Officer Aaron Kowalski talks about what’s new and next in terms of research. He also gives us perspective on what’s come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we’re all very familiar with now, but that almost didn’t happen.

Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1.

Plus.. how do you get rid of needles and Sharps containers? The rules aren’t the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live.

 
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1:30 Stacey welcome

4:10 Interview with Aaron Kowalski

52:30 Information about Sharps Containers from SafeNeedleDisposal
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Sep 30, 2018

The Fox TV show "The Resident" takes on type 1 diabetes and gets it right! This week's episode "The Prince and the Pauper" features two plot lines about diabetes. Stacey speaks with the co-executive producer Andrew Chapman on why this issue and why now.

Chapman lives with LADA (Latent Autoimmune Diabetes in Adults) also known as type 1.5. He tells Stacey there are two other people with diabetes on the writing staff.

Drew Chapman's author page

See Chapman's play 99 Tropes in Seattle later this year!

Learn more about LADA in previous episodes:

The DIYPS (LADA featured in the Community Connections) Also features information about the start of OpenAPS

Disney Channels' Jennifer Stone Shares Her Story

Game show episode: Wait Wait Don't Poke Me! (From July)

When TV & Movies get diabetes wrong (Beyond Type 1 article)

Also this week, what researchers are learning about OpenAPS – the do it yourself closed loop – from Twitter conversations! Read the study write up here. 


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1:25 Stacey Welcome

5:00 Interview with Andrew Chapman

35:00 Movie & TV T1D Mistakes (other shows and movies)

36:30 OpenAPS and Twitter: a new study (and Stacey shares her social media policy)

41:40 Stacey will be in Syracuse middle of October

42:40 Stacey shares field trip stories (Benny is on one this week)


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Sep 27, 2018

A difficult but important interview with Nicole Smith Holdt. Her son, Alec, died in 2017 just after he came off his parents' health insurance and realized he couldn't afford his supplies. He began rationing insulin and died less than a month later.

Stacey talks to Nicole about how this could have happened and what her message is to the diabetes community and to lawmakers. Nicole will be at the #Insulin4All rally and protect Sept 30 at Eli Lilly headquarters.

More information:

Insulin4All Protest information

NPR: High Price of Insulin Leads to Lethal Rationing

Snopes: Did Alec Smith Die Because He Couldn't Afford Insulin


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Sep 25, 2018

"Open Up Your Bag" is a new children’s picture book about diabetes. The story behind it takes us into a great conversation with the author Mike Lawson. Mike was diagnosed as a young adult (after initially being misdiagnosed as type 2) and he shares stories about finding the diabetes community, getting involved in organizations like TuDiabetes.Org and Diabetes Hands Foundation and what led him to write the book and start Diabetes Doodles

Plus, a new resource for our community is now available in audio form. Listen to a bit of Bright Spots and Landmines, a diabetes guide by DiaTribe's Adam Brown

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! You can get Bright Spots and Landmines by using this link.

Learn more about A Bad Case and listen to our previous interview with Erin Spineto 


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2:00 Stacey Welcome - Hurricane Florence update and "A Bad Case" is being released

5:20 Interview with Mike Lawson

36:30 Stacey talks about Big Blue Test (watch here)

38:00 Audio samples from Bright Spots & Land Mines

43:30 Stacey talks about Chia Pudding - it needs a new name!!


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