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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Dec 11, 2018

Advocate and author Quinn Nystrom was diagnosed with type 1 as a young teenager, just a few years after her little brother developed T1D. Her high school prom date inspired the title of her book, "If I Kiss You Will I Get Diabetes."

Quinn shares her story, talks about running for office and tells us what's next. 

Plus, MySugr CEO Frank Westermann on how his company tries to help make diabetes suck less (and we get Stacey's reaction to that motto).

Want Stacey to speak at your event in 2019? Email stacey@diabetes-connnections.com or connect on any of our social channels.

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2:00 Stacey welcome

3:00 Stacey shares podcast reviews (one is a question about the Facebook group, link below)

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5:00 Scott Johnson interviewed Stacey last week via FB live. You can watch that here or read the transcript! Stacey also shares the story of the first time she met Scott at the Friends for Life conference.

8:20 Interview with Quinn Nystrom

47:30 Interview with Frank Westermann

57:40 Stacey talks about events for next year


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Dec 4, 2018

It's Stacey's family's 12 year diaversary. Benny was diagnosed the first week of December in 2006 just before he turned two. This week, Stacey takes a look back and gives an update on how they're managing now. There are significant changes to share; Benny started an untethered routine about two months ago.

Learn more about untethered here. Also known as POLI (Pumping On Long Acting Insulin) untethered means you take long acting insulin like Tresiba or Lantus once a day but also use the pump. Stacey explains more. 

Also this week, one of the biggest changes in the past 12 years has been the rise of smart devices. Stacey talks about Klue, a new app that can sense when you’re eating and help you with boluses! Check it out and sign up to Beta here. 

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. 

 
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1:30 Stacey welcome & reads reviews

6:40 Stacey reflects on life in 2006 when Benny was diagnosed

9:40 Diagnosis story

17:00 Big recent changes we've made: switch from Animas to Tslim last year. Got Basal IQ in late August. Started Untethered management in October.

Listen back to our Ten Year episode featuring Stacey's whole family

35:15 Interview with Klue's Katelijn Vleugels

46:20 Some programming notes, two more shows left in 2018 - no show the week of Christmas. Book Stacey for events for 2019 (the calendar is already starting to fill up!) email stacey@diabetes-connections.com 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Nov 27, 2018

We've got a parent's survival guide when it comes to teenagers and type 1 diabetes this week. What to do when your child doesn’t want to hear about diabetes anymore and hears your helpful advice as just plain nagging.

Jill Weissberg-Benchell has a PhD in psychology and is also a certified diabetes educator. We discuss talking to your teen, listening to your teen and strategies to get through this oh-so-interesting time in their lives. It’s not just about attitude. Their bodies are making it really difficult for diabetes.

Plus, remember the glucose necklace? It looks sort of like a glow stick necklace but contains sugar for lows on the go? They’re going to be ready to go by the end of year and we have a way to get yours for free. Head over to Glucose Revival and sign up for their newsletter (Look for "Get Updates") to get on the list for 1000 free necklaces. Diabetes Connections is not affiliated with Glucose Revival - be aware that you are sharing your email information in exchange for this free offer. 

 
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1:45 Stacey Welcome - Stacey reads a recent Apple Podcast review and talks about events for 2019 - email stacey@diabetes-connections.com to request Stacey as a speaker. 

5:20 Interview with Jill Weissberg-Benchell

Stacey talks about Raising Teens with Diabetes from Moira McCarthy (link to buy from Amazon)

55:45 Know Better: Glucose Revival Necklace (link back to our original interview with them)


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Nov 20, 2018

Loop - the DIY app that helps with automated insulin delivery - may become the first do it yourself diabetes solution to go to the FDA. But why did Tidepool decide to take on this challenge? Stacey talks to Tidepool CEO Howard Look about what this decision means, how it’s going to work and what it means for those interested in DIY but not willing to use out of warranty pumps or do a lot of programming ourselves. And of course we’ll explain what Loop actually is.

Read the Medium article Howard mentions here

A French company announces they’re a step closer to approval of their closed loop – we’ll talk about Diabeloop 

And Pandora gets into the podcasting space. Diabetes Connections is one of the few shows selected for the first launch!

Listen to past episodes where we talk to DIY, OpenAPS and We Are Not Waiting advocates and experts.


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1:30 Stacey welcome & explains Loop

6:50 Interview with Howard Look

30:30 Diabeloop explained

35:00 Pandora and podcasts

Become part of the Pandora's Beta testing as a listener


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Nov 13, 2018

Carl Armato was diagnosed with type 1 as an infant, he’s now the CEO of Novant Health, a large hospital system. But Carl didn’t share his diagnosis with many people – partly because of a reaction he got from a coach in middle school – who cut his playing time when he found out. Now very open about his T1D, Carl has written a book, A Future With Hope, that tells the story of his diagnosis, growing up in the days before home meters and how his family rallied around him. 

Plus, this week marks World Diabetes Day! Ever wondered why the symbol is a blue circle? We’ll explain. 

And Stacey gives a sneak peak of her new project: Club 1921!

 
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1:40 Stacey welcome, talks about recent Facebook issue with podcasts. If you listen via Facebook please consider switching over to a podcast app or the homepage 

6:00 Interview with Novant CEO Carl Armato

57:33 The Blue Circle explained

 

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Nov 5, 2018

Andrew Armstrong was diagnosed with type 1 diabetes in high school, when college scouts were already coming around. He had the unique experience of being recruited by someone who knew exactly what he was going through - one of the coaches he met had a daughter with T1D. 

Andrew is now in his third year at SU and linebacker coach Brian Ward still supports him, as does Athletic Trainer Tim Pike who lives with type 1. Andrew shares his story plus tips and advice for student athletes.

We taped this episode in front of JDRF families at Syracuse University. They asked Andrew questions and then Stacey put the kids in front of the microphone. 

And, this diabetes awareness month, Stacey takes a moment to talk about Project Blue November, a clearinghouse for online diabetes news, events and inspiration. 

 
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1:50 Stacey welcome

5:00 Interview with Andrew Armstrong

Interview with JDRF CNY Ambassadors:

32:00 MP 

34:30 Bella

37:30 Logan 

Hockey Fights T1D

40:00 Amie 

51:00 Project Blue November

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Nov 1, 2018

This bonus episode is about running, community and finding a way to make a difference. It's a great way kick off Diabetes Awareness Month. 

Stacey worked with Tammy Lowry in her previous job at a radio station. In 2015? Tammy's son Jackson was diagnosed with type 1, just a few weeks before they were both set to run a half marathon to benefit children's cancer research. Jackson's diagnosis took him out of that race, but it led to bigger goals.

You can read about that first year here.

Read about Tammy & Jackson now.

Learn more about the Isabella Santos Foundation

 
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Oct 30, 2018

Stacey talks to Jen Block from Bigfoot Biomedical with a look at why they plan to be more than a pump company, offering help navigating healthcare and a subscription service. Jen is the VP of Medical and Clinical Affairs. She was diagnosed with type 1 her sophomore year in college, during a cross country road trip. Now a Nurse Practitioner and Certified Diabetes Educator, she shares her story and details about Bigfoot.

In our Know Better Segment, one of the very first studies about LADA – sometimes called type 1.5. We’ll tell you what researchers learned.

And Stacey shares a story about a recent wedding where she made one T1D friend and embarrassed herself trying to track down another.  


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1:40 Stacey Welcome

4:50 Interview with Bigfoot's Jen Block

49:30 LADA study

52:30 Stacey doesn't have diabetes radar but she is very embarrassing when she thinks she does..  

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Oct 23, 2018

Once called deliberately non-compliant, this week's guest is all about the importance of language when it comes to diabetes. Renza Scibilia has some strong opinions about why words really matter.

We’ll talk more about her non compliance – it has to do with her Looping, using one of the do it yourself options - and about her diagnosis as a young adult. Plus, information from Diabetes Australia and The Grumpy Pumper

In our Community Connections this week, the Type 1 Renegade Run is making noise in the Northeast. The event this past weekend marks the 7th year of this obstacle course and block party.

And a closer look at keeping insulin at the right temperature from the pharmacy to your fridge. JDRF, ADA & Helmsley Trust are teaming up to study this issue. 

Did you see Chris Ruden pop up in the NBC Titan Games promo?! Here's our interview with the T1D body builder from last year.

 
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1:30 Stacey Welcome - Syracuse and DC round ups, looking ahead to the DiabetesMine Summit

4:00 Interview with Renza Scibilia

39:40 Interview with Renegade Run's Tyson Sunnerberg

52:00 Know Better: insulin study

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Oct 16, 2018

Darrell Greene is one of the first people to try Eversense, the implantable long-term CGM from Senseonics. With Eversense, a doctor places the sensor in the upper arm where it stays for three months. More information here.

Darrell explains what the experience is like, how the sensor feels under the skin and shares his story of living with T1D since his early 20s. Darrell is a local news anchor in Memphis, Tennessee and has some fun stories to share about working in the industry. 

Watch the video of Darrell and his doctor explaining Eversense. Darrell even taped the procedure!

Our Know Better segment this week features information about Lilly's faster acting insulin, moving along through the aptly named PRONTO studies.


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1:30 Stacey welcome - information about the podcast on YouTube

5:15 Interview with Darrell Greene

49:00 Information on Lilly's faster insulin - Pronto Studies

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