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Diabetes Connections with Stacey Simms

The diabetes news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent T1D advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms
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Now displaying: Page 1
Oct 9, 2018

JDRF’s Chief Mission Officer Aaron Kowalski talks about what’s new and next in terms of research. He also gives us perspective on what’s come before including how JDRF helped fund the CGM and hybrid closed loop landscape that we’re all very familiar with now, but that almost didn’t happen.

Aaron explains what else JDRF is looking at these days, including glucose responsive insulin. He shares his family's story as well - he and his brother both have type 1.

Plus.. how do you get rid of needles and Sharps containers? The rules aren’t the same in every state or even every city. Put your Zipcode in at this website and find out what's recommended where you live.

 
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1:30 Stacey welcome

4:10 Interview with Aaron Kowalski

52:30 Information about Sharps Containers from SafeNeedleDisposal
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Sep 30, 2018

The Fox TV show "The Resident" takes on type 1 diabetes and gets it right! This week's episode "The Prince and the Pauper" features two plot lines about diabetes. Stacey speaks with the co-executive producer Andrew Chapman on why this issue and why now.

Chapman lives with LADA (Latent Autoimmune Diabetes in Adults) also known as type 1.5. He tells Stacey there are two other people with diabetes on the writing staff.

Drew Chapman's author page

See Chapman's play 99 Tropes in Seattle later this year!

Learn more about LADA in previous episodes:

The DIYPS (LADA featured in the Community Connections) Also features information about the start of OpenAPS

Disney Channels' Jennifer Stone Shares Her Story

Game show episode: Wait Wait Don't Poke Me! (From July)

When TV & Movies get diabetes wrong (Beyond Type 1 article)

Also this week, what researchers are learning about OpenAPS – the do it yourself closed loop – from Twitter conversations! Read the study write up here. 


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1:25 Stacey Welcome

5:00 Interview with Andrew Chapman

35:00 Movie & TV T1D Mistakes (other shows and movies)

36:30 OpenAPS and Twitter: a new study (and Stacey shares her social media policy)

41:40 Stacey will be in Syracuse middle of October

42:40 Stacey shares field trip stories (Benny is on one this week)


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Sep 27, 2018

A difficult but important interview with Nicole Smith Holdt. Her son, Alec, died in 2017 just after he came off his parents' health insurance and realized he couldn't afford his supplies. He began rationing insulin and died less than a month later.

Stacey talks to Nicole about how this could have happened and what her message is to the diabetes community and to lawmakers. Nicole will be at the #Insulin4All rally and protect Sept 30 at Eli Lilly headquarters.

More information:

Insulin4All Protest information

NPR: High Price of Insulin Leads to Lethal Rationing

Snopes: Did Alec Smith Die Because He Couldn't Afford Insulin


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Sep 25, 2018

"Open Up Your Bag" is a new children’s picture book about diabetes. The story behind it takes us into a great conversation with the author Mike Lawson. Mike was diagnosed as a young adult (after initially being misdiagnosed as type 2) and he shares stories about finding the diabetes community, getting involved in organizations like TuDiabetes.Org and Diabetes Hands Foundation and what led him to write the book and start Diabetes Doodles

Plus, a new resource for our community is now available in audio form. Listen to a bit of Bright Spots and Landmines, a diabetes guide by DiaTribe's Adam Brown

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! You can get Bright Spots and Landmines by using this link.

Learn more about A Bad Case and listen to our previous interview with Erin Spineto 


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2:00 Stacey Welcome - Hurricane Florence update and "A Bad Case" is being released

5:20 Interview with Mike Lawson

36:30 Stacey talks about Big Blue Test (watch here)

38:00 Audio samples from Bright Spots & Land Mines

43:30 Stacey talks about Chia Pudding - it needs a new name!!


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Sep 18, 2018

Big news for Abbott, the makers of the FreeStyle Libre. This summer the FDA okayed a shorter warmup and a longer wear for the glucose monitor. Stacey talks to Tim Dunn, Abbott’s Director of Clinical research. They talk about the challenge of longer wear, the practical info you need to know if you use the Libre, and a look down the road as they partner with companies like Bigfoot.

Plus, a protest planned at the end of the month – all about affordable insulin. We’ll explain how you can help even if you can’t be there in person. Information from T1International here.

Join the Diabetes Connections Facebook Group! 

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1:30 Stacey Welcome

4:30 Interview with Tim Dunn

40:30 #Insulin4All Protest information 

43:00 Stacey upcoming events & shares why in-person connection is important. She talks about the first time she and Benny met a little boy who wore an insulin pump and what a difference that made for them. 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Sep 11, 2018

Letting go of your college-aged child is a challenge even without type 1 on board! We talk to the College Diabetes Network, a college senior with T1D and her mom about fears, communication and making it work. CDN recently surveyed parents about their fears and we'll share the top ten.

Plus, medical help for your 18+ year old child. Even if they're still on your health insurance plan, you can't assume you'll be able to help in an emergency or access their medical records. Here are a few articles to help:

Consumer Reports - Help your college aged child in an emergency

Grown & Flown - When your college kid has an emergency

And Stacey shares how what she calls on her of worst diabetes parenting moments became one of her best. 

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1:33 Stacey welcome, mentions Jewish holiday carb counts from Beyond Type 1 and Project Blue November

3:50 Interview with CDN's Stacey Cunnington, Courtney & Karlyn Gale

55:00 Stacey reads the entire list of Top Ten Fears Shared by Parents of T1D College Students

56:30 Know Better: Medical help for your adult child

59:15 Stacey's not-so-proud parenting moment

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Sep 4, 2018

It's been 20 years since Nicole Johnson took the crown, becoming Miss America. That was just five years after she was diagnosed with type 1. At diagnosis, her doctors told her she was too sick to continue college, to pursue her dreams of being a journalist and to have a baby.  Nicole shares how she overcame that prediction to go on to finish school, compete and win pageants and to have a child a few years later. We’ll also talk about some controversy among the Miss American organization today.

Other Miss America contestants with type 1 include Sierra Sandison and Caroline Carter (click to listen to our previous interviews with them)

Plus, one small step toward a DIY Omnipod Loop. Learn more about OpenOmni.

Stacey also shares a recent issue with Benny's insulin pump and what they did for a backup plan. 

This podcast is not intended as medical advice. Please contact your health care provider with any questions. 

Join the Diabetes Connections Facebook Group! 

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1:50 Stacey Welcome 

2:45 Stacey talks about the official launch of Jesse Was Here for those who've lost a loved one to diabetes

4:15 Listen to Nicole win the crown in 1998

6:00 Interview with Nicole Johnson

53:15 Stacey talks about OpenOmni (you can also learn more about NightScout here and OpenAPS here)

56:10 Stacey shares their issue when Benny's insulin pump wouldn't charge

Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 

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Aug 30, 2018

Tandem's Predictive Low Glucose Suspend is out! Stacey and Benny got the software update on Saturday, August 25, 2018 and this bonus episode includes Stacey's thoughts on how the first few days turned out. 

More information on the Basal IQ software here.

Head over to Tandem's portal to sign up to get the update if you already have a Tslim X2 pump and a Dexcom G6

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Aug 28, 2018

Instead of a rescue Glucagon shot, how about a nasal spray? A simple spray for emergency low blood sugar is in front of the FDA right now. We speak with Lilly Diabetes Senior Medical Director Dr. Thomas Hardy about the need for this product, what it is and how it works. 

In our Know Better segment.. a quick tip about Dexom’s G6 - save your papers!! More in Stacey's Facebook live video here.

And a bit about the Bike Beyond documentary.  Stacey says it wasn't what she expected at all. You can buy the DVD here or find out how to host a watch party. 

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1:35 Stacey Welcome - thanks to DiabetesMine and Jacobs Media (& Elsie Escobar) for featuring us in recent columns

5:30 Interview with Dr. Thomas Hardy, Medical Director for Lilly Diabetes

28:30 Stacey shares her mistake when she was training again on injectible glucagon

32:00 Dexcom G6 information - keep your paper

35:30 Bike Beyond - Stacey's review of the documentary

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Aug 21, 2018

It's time for back to school with T1D. Do you know your child's rights and how to best talk to school staff? We have an in depth conversation with Crystal Woodward, Director of the American Diabetes Association’s Safe at School program. 

Crystal talks about daycare, preschool and elementary schools. She knows her stuff - in addition to heading up the ADA's program, Crystal's daughter was diagnosed as an infant and is now an ICU nurse. 

Plus, a ready to use glucagon pen goes to the FDA.. what would the first room temperature-stable liquid glucagon mean for us? Find out about Xeris's product and the unique way they filed for approval.

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1:20 Stacey welcome and a little bit about sending Benny to daycare and Kindergarten. Mentions FB Live where we announced being selected as a Top Ten Health Podcast (The Podcast Awards)

4:45 Interview with Crystal Woodard about ADA's Safe at School

52:30 Stacey talks about easy podcast apps to use if you're listening on Facebook or through the website and want other options.

Listen on iPhone http://ow.ly/pgfg30kyYrG

Listen on Android http://ow.ly/CQnf30kyYqn

57:00 Stable Glucagon goes to the FDA

1:02:30 Stacey hits the road! Reach out if you'd like her to come speak to your group.

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