Howard Look formed Tidepool after his daughter was diagnosed with type 1 in 2011 and, as a self-described "geek-dad" he was frustrated with the lack of access to her diabetes data. Tidepool is a platform for diabetes information and the apps that use it. It includes an uploader to get information off of devices like CGMs and insulin pumps and view them in a clear and accessible way. Look talks about the other features of Tidepool which help you make sense of what you're seeing. He also shares how his family uses Tidepool to make their diabetes management easier. Tidepool was honored at the White House last year and Howard Look shares his experience of being asked to sit on a panel with President Obama in February. Stacey also talks to a North Carolina father participating in the American Diabetes Association's' Tour de Cure. He got involved because his daughter's best friend has T1D and she wanted her friend to have a sleepover. The family got educated about type 1 and their involvement took off from there.
Dr. Ed Damiano is the developer of the bionic pancreas, a closed-loop system that uses a pump and a CGM to automate delivery of insulin as well as glucagon currently in clinical trials. Dr. Damiano got the idea for a dual-chambered system when his son was diagnosed with type 1 at the very young age of 11 months. Dr. Damiano talks to Stacey about the system, now called the "iLet" and about the new company formed to help bring it to market. Called Beta Bionics, it's a unique kind of company, perhaps the first of its kind in the diabetes sector. Dr. Damiano explains what a public benefit corporation is and why he felt it was necessary to form one in order to get the iLet from prototype to commercial product. In this episode, Stacey also shares the story of her family's first JDRF Walk almost ten years ago and how her daughter, who doesn't have diabetes, reacted to the idea of raising money for better research.
"The Human Trial" is a documentary in process about a potential new treatment for type 1 diabetes. Stacey talks to director Lisa Hepner about her life with type 1 and why she wanted to share this story. The movie features ViaCyte, a California biotech firm testing a stem cell treatment for T1D. They have FDA approval to test only the fourth embryonic stem cell-derived product in the world in people. As those human trials progress, Hepner and her crew are there to film the process. They hope to use the documentary to spread awareness and education about type 1 and about the encapsulation method. In this episode, we learn what ViaCyte is, all about encapsulation and why so many researchers and scientists are excited about these latest trials.
Sam Talbot shot to fame as a finalist on Bravo's Top Chef, then helped found the new diabetes advocacy group, Beyond Type 1. Diagnosed with type 1 when he was 11, Sam shares his love of healthy food, clean eating and managing diabetes despite a very busy schedule & lots of travel. Our Community Connection this week is health coach Daniele Hargenrader, better known at Diabetes Dominator. She's overcome her own health and life challenges with gusto and now helps others succeed.