Amy Tenderich is the founder and Editor-in-Chief of DiabetesMine, one of the oldest and most respected diabetes blog sites. Ten years ago, she wrote an open letter to Steve Jobs about diabetes technology. The letter went viral and Amy turned that energy and feedback into an international crowd-sourcing competition called the DiabetesMine Design Challenge. That led to the influential annual DiabetesMine Innovation Summit, and a biannual meeting of tech developers called the DiabetesMine D-Data ExChange, which is happening again June 9.
Stacey & Amy talk about what prompted her to write that letter and what she thinks has changed most since that time. Amy also shares her personal story, she was diagnosed as an adult in 2003, and explains what the D-Data ExChange is all about.
Also this week, Stacey shares a follow-up about a previous Community Connection, Willl's Way. We talk about getting diabetes gear to stick in the summer sweat and wet (listen to the episode referenced here) and get ready for Bike Beyond. Diabetes Connections is partnering with the folks at Beyond Type 1 to bring you stories from an epic cycling trip from NY to San Francisco.
Diabetes Connections is now available as an app!
As always, thanks for listening!!
Jason Gensler has the unique experience of being one of the longest users of one of the newest insulin pumps. He started in a pivotal trial of the Medtronic 670G two years ago and has been allowed to keep using it ever since. Jason shares his misgivings about going back to Medtronic; he had a bad experience with a previous pump and sensor. He also talks about why he feels this system is revolutionary and has given him a new way of looking at managing T1D.
This interview is the first we're sharing that was not conducted by Stacey. Jason is interviewed by Weston Nordren, Vice President of the Nightscout Foundation and Community Outreach for the Foundation. It was originally presented as a video (you can watch here)
Note: Jason Gensler does NOT work for Medtronic and is not compensated by them. He did not pay for the pump/sensor system as he received it as part of a clinical trial.
This week, he’s traveled the world, despite type 1, and now Jeremy Larsen is back in the US, traveling to the US Parks and Monuments. Saying "You always find a way," he wants to inspire us to get out and have fun without fear as we travel with diabetes. Jeremy shares why he's back home in the US to travel the parks, after living and traveling abroad for many years. He also explains why he's made his trip a fund raiser for JDRF.
As of this episode air date, Jeremy will be about six weeks into his trip. We caught up with him near the beginning.
Stacey also talks about the new iPhone & Android apps available for Diabetes Connections. Now it's easier than ever to listen to the podcast and share it with friends and family touched by type 1 diabetes.
This week, diabetes educator Heather Lage has a daughter with type 1 and a son who's tested positive through the screening service TrialNet. TrialNet offers a screening test that can detect markers for T1D called autoantibodies up to 10 years before diagnosis. What’s it like to know your child will get type 1 diabetes? What does her son think about it? Heather Lage shares her family’s story.
TrialNet's ultimate goal is to learn enough about diabetes to prevent it. Many people who test positive are given the chance to enroll in clinical trials.
Also this week, a look at the 8th annual Diabetes Blog Week. Stacey talks with Karen Graffeo who started this event and has been amazed at the growth.
Plus, Stacey announces her partnership with Bike Beyond, a cross-country bike event from the people at Beyond Type 1. Stay tuned or more information and on the road reports from these incredible bikers, all of whom have T1D.
This week, Ed Damiano talks about his Bionic Pancreas project. Using a pump called the iLet and a Dexcom CGM, the only information the Bionic Pancreas needs is the user's body weight. It adapts to you, no need to figure out insulin to carb ratios or correction factors. The iLet will eventually come to market using both insulin and glucagon, but the first version will be insulin-only.
Stacey & Ed talk about the long journey to get to this point, why he had to start a brand new kind of company (Beta Bionics) to help bring the iLet to market and just when he expects it to be available.
Stacey also shares some of what she learned at the recent HealthEVoices Conference and talks about the milestone of this episode: It's the 100th regularly scheduled show for Diabetes Connections!