Two very different guests this week, each of whom is educating about type 1 diabetes in their own way. When an FDA panel considered allowing a labeling change for the Dexcom CGM, 15-year-old Caroline Dorn testified about her experience. Dorn joined advocates and health professionals telling the panel why it should allow insulin dosing off the Dexcom G5 without a confirming fingerstick. Stacey talks to Caroline and her mother about why they traveled to Washington DC to do this and gets their reaction to the FDA panel approving the change (it now goes to the full FDA).
Brandon Denson was diagnosed with type 1 as a high school senior and went on to play college and professional football. He also had an appearance on American Ninja Warrior, with his insulin pump site and CGM sensor in full view. Stacey talks to Brandon about how he continues to inspire and his work with children both with and without type 1.
Plus, a close call for Stacey. What happens when the mail-order insulin box is mistaken for a frozen delivery? After almost ten years of dealing with type 1, Stacey explains you can still be sure to expect the unexpected!
When the Miss America Competition gets underway on September 11, our eyes will be on Miss New Hampshire Caroline Carter. Diagnosed with type 1 diabetes at age 10, her first passions were basketball and theater. Pageants came along later and she found great success, becoming Miss America Outstanding Teen New Hampshire in 2014 and then Miss New Hampshire 2016 in May.
Caroline talks to Stacey about wearing her diabetes tech (pump and cgm) during pageants and how she prepares for the long hours and constant travel. She talks about her friendships with Miss America 1999 Nicole Johnson and Miss Idaho 2015 Sierra Sandison, both of whom have T1D.
You can vote for Caroline as the People's Choice for the Miss America Competition in the link below. The winner of this voting moves onto the pageant finals.
Stacey also shares her advice for parents with children going back to school right now, including a letter/email she sent home to parents when her son was in elementary school.
After years of rejecting his family's love of running, Casey Boren "got talked into" a mini-triathlon and found his passion. He trained for and successfully finished an IRONMAN triathlon at the age of 35 but was almost immediately after diagnosed with type 1 diabetes. He talks to Stacey about learning to train with T1D and how he not only finished more IRONMAN races, but competed at the World Championship in Hawaii. Casey and other elite athletes with type 1 started the Diabetes Sports Project last year. It's a way to inspire and share stories in order to help others live active healthy lives with diabetes.
You can vote for Casey this week in the Runner's World Cover Search contest. He is one of 100 semifinalists and needs your vote by 8/21/16. (Vote here)
Stacey also talks to 16-year-old Canadian soccer phenom Michael Thornton. He and his family moved to Spain in 2013 to allow Michael to compete among the best in the world. He talks about learning the language and managing diabetes in a completely new environment. Diagnosed at age six, Michael and his family are back in Canada. Stacey caught up to him at this summer's Friends for Life conference in Florida.
Bigfoot Biomedical came on the scene in 2014 determined to change the way companies look at diabetes technology. They've moved forward quickly and are now starting their first clinical trial for their "Smartloop" automated insulin delivery system. Stacey talks to Bigfoot Chief Engineer Lane Desborough about what this system is, what the trial is testing, and how you can find out if you're eligible to enroll.
Desborough is also the co-creator of Nightscout, the free, open source CGM remote monitoring system and is credited with coining the term "We are not waiting." Like all four founders of Bigfoot, Desborough has a child with type 1 diabetes.
This week, the American Association of Diabetes Educators holds its annual conference. Do you have a Certified Diabetes Educator (CDE)? We'll talk about the help they provide and how to get the most out of your relationship. AADE President Hope Warshaw shares her message to people with diabetes and to educators.
Hope is also the author of many books including Eat out Eat Well, the Guide to Healthy Eating in Any Restaurant and Diabetes Meal Planning Made Easy. She is a registered dietitian, a certified diabetes educator and a sought-after consultant.
This year’s AADE conference will see something new, a live Twitter chat hosted by DSMA. Diabetes Social Media Advocacy is a powerhouse when it comes to connected people within the diabetes online community. Stacey talks about DSMA and more with advocate and blogger Scott Johnson.
Many parents of young children with type 1 diabetes have found childcare very difficult to navigate. But rarely are children with type 1 excluded, in writing, from daycare, camp and before and after school programs. That’s the case right now, though, in the US Military. An Army policy dictates that T1D kids can’t be cared for in those programs. Recently, the American Diabetes Association joined a lawsuit to try and change that. Stacey talks to Sarah Fech-Baughman, the director of litigation for the American Diabetes Association. Find out more about this case, what you can do if you have trouble finding childcare and Sarah’s unique connection to type 1.