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Diabetes Connections with Stacey Simms Type 1 Diabetes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Diabetes Connections with Stacey Simms Type 1 Diabetes
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Now displaying: Category: family
Jul 16, 2019

It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that’s when some unexpected good things started happening.

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Jim tells us the story – it was July last year – and explains how Disney  and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic.

Find out about Touring Plans here

Find out about the Lines app here

Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice)

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In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. 

And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone.

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Show open: What's on this week?

1:30 Welcome

7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World

29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp.

35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here

A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. 

Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states.


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Jun 4, 2019

With Father’s Day coming up we’re taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. 

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Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind.

In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We’ll find out about Project 50 in 50 and how you can get involved.

Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. 

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00:00 Show open and "tease" - what's on the show this week?

2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 

4:50 Interview with Mark & Alan of Diabetes Dads

39:00 Stacey talks about diabetes camp (continuing the conversation from the interview)

41:00 Community Connection: Project 50 in 50

45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Dec 18, 2018

The Mure family won 50-thousand dollars in the Great Christmas Light Fight on ABC and gave it to JDRF. Stacey talks to Joe Mure who wasn’t sure he wanted to compete at all. He hung up twice on the producers! Joe’s son was diagnosed with type 1 at age 5 and we get the story behind the Little North Pole and the network competition. 

If you'd like to donate to JDRF via The Little North Pole, click here

Plus, who is the Hangry Woman? We talk to Mila Buckley about finding support for a younger person with type 2 diabetes.

Also this week, Stacey reports that CW Star Austin Basis (Beauty and the Beast and more) has published his comic books, The Kinetix. We talked to him earlier this year when the stories about a superhero teem of kids with disabilities was launched on Kickstarter. Listen to that episode here. 

And, with this last scheduled show of 2018, a look back at an amazing year.

 
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Stacey Welcome: We talk about the Kinetix from Austin Basis

Interview with Joe Mure about the Great Christmas Light Fight

26:30 Interview with Mila Buckley - The Hangry Woman

47:30 Looking ahead to 2019 (sneak peek at upcoming shows)


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Dec 4, 2018

It's Stacey's family's 12 year diaversary. Benny was diagnosed the first week of December in 2006 just before he turned two. This week, Stacey takes a look back and gives an update on how they're managing now. There are significant changes to share; Benny started an untethered routine about two months ago.

Learn more about untethered here. Also known as POLI (Pumping On Long Acting Insulin) untethered means you take long acting insulin like Tresiba or Lantus once a day but also use the pump. Stacey explains more. 

Also this week, one of the biggest changes in the past 12 years has been the rise of smart devices. Stacey talks about Klue, a new app that can sense when you’re eating and help you with boluses! Check it out and sign up to Beta here. 

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. 

 
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1:30 Stacey welcome & reads reviews

6:40 Stacey reflects on life in 2006 when Benny was diagnosed

9:40 Diagnosis story

17:00 Big recent changes we've made: switch from Animas to Tslim last year. Got Basal IQ in late August. Started Untethered management in October.

Listen back to our Ten Year episode featuring Stacey's whole family

35:15 Interview with Klue's Katelijn Vleugels

46:20 Some programming notes, two more shows left in 2018 - no show the week of Christmas. Book Stacey for events for 2019 (the calendar is already starting to fill up!) email stacey@diabetes-connections.com 


Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! 
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Nov 1, 2018

This bonus episode is about running, community and finding a way to make a difference. It's a great way kick off Diabetes Awareness Month. 

Stacey worked with Tammy Lowry in her previous job at a radio station. In 2015? Tammy's son Jackson was diagnosed with type 1, just a few weeks before they were both set to run a half marathon to benefit children's cancer research. Jackson's diagnosis took him out of that race, but it led to bigger goals.

You can read about that first year here.

Read about Tammy & Jackson now.

Learn more about the Isabella Santos Foundation

 
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Jun 12, 2018

What happens when you have type 1 diabetes and you own an ice cream shop? Well, you hear a lot of dumb jokes, of course, but you also have a lot of fun. Guest Brandon Wallis also has a little girl with type 1, diagnosed at age 2, and he has some good advice for diabetes dads as we head toward Father’s Day.

Plus, it’s off to camp for a lot of kids already this summer or in the weeks to come. In our Know Better segment, Stacey's son Benny gives us his take diabetes camp sleep away camp.

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1:30 Stacey welcome - she explains due to a lot of travel she may not be on social media quite as much until the middle of June

3:45 Interview with Brandon Wallis

31:00 Know Better segment: Benny talks about D-Camp

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40:15 Stacey talks about sponsors for the podcast

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Mar 27, 2018

Diabetes is tough enough on a family. But when divorce is in the picture, managing T1D in two homes can be even more complicated. Sharon Kabbas Chrisman's daughter was diagnosed at age 11, after she and her husband had been divorced for a few years. Sharon shares her experience, what she learned, mistakes she made and how her daughter, who turns 18 soon, is doing now.

Read Sharon's in-depth column here

Learn more and join the Type 1 Diabetes in Two Homes Facebook Group

We also talk about a new app in development to help tweens and teens – and their parents – transition to more independence. Bree Holtz from Michigan State University explains My T1D Hero.

And in our Know Better segment.. Christophe Noel was diagnosed type 1 in Nepal in 2015. He's returning to the region to help bring clean water and diabetes test kits for kids. Find out how you can help.

And thanks to listener Sarah who sent in audio of her Amazon Echo device playing the show. Find out more about our Alexa skill and please leave a review!

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2:00 Stacey Welcome & talks about the new Alexa Skill

4:30 Interview with Sharon Kabbas Chrisman

48:00 Community Connections with Michigan State Univ's Bree Holtz 

59:15 Know Better: Learn about clean water & T1D tests in Nepal

1:03:30 Listener Sara sent in audio of her "enabling" the podcast on her Amazon Echo

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Feb 13, 2018

We're celebrating Valentine's Day with a great story. Amy & Andrew Sturniolo met and fell in love at Diabetes Camp, and that’s also where they got engaged. This week, hear the story of those now-newlyweds and find out how Andrew got all of Camp Kudzu to help him propose.

Watch the proposal video (Amy is stunned)!

Camp Kudzu Info Here

More Camp Info Here  and Even More Here

In our Know Better segment, learn about Spare a Rose, Save a Child. You can help save a life for the cost of just one flower.

It's also Diabetes Podcast Week. For the third year in a row, Stacey has organized more than a dozen podcasters to help promote Spare a Rose and to share each others' shows.

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2:45 Stacey talks about Spare a Rose

6:00 Interview with Andrew & Amy Sturniolo

28:15 Stacey talks about Diabetes Podcast Week and more about Spare a Rose

Link to Christopher Snider's 2014 interview with Stacey

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Mar 7, 2017

This week, a conversation about a medical mystery and a family's search for answers. Nine-year-old Jack Smith was diagnosed with type 1 as a toddler, but in the last year he's become allergic to insulin. His mother, Jaclyn, shares their story with Stacey.

About 2% of people with type 1 diabetes have an insulin allergy, but it’s almost always tied to a type of insulin. They are able to switch and can continue dosing without issues. Jack has reacted to every available type of insulin & all methods of injection or infusion. 

Note: This interview was taped 2/28/2017, just before Jack was to go back to Duke for a new treatment. As it airs (3/7/17) the first IVIG treatment Jaclyn mentions resulted in some serious side effects, sending Jack to a local hospital. He's recovered and plans are in place to try to prevent those symptoms at the next infusion.

You can follow Jack's story here (Facebook page).

 

 

 
Feb 14, 2017

This week, Meri Schuhmacher-Jackson shares her unique story. Three of her four sons have type 1 diabetes. Several years ago her first husband died after a short & intense battle with cancer. Incredibly, Meri found love again. She's remarried and she and her husband have nine children between them! Meri shares her story on her blog "Our Diabetic Life."

Plus.. a look at a high protein frozen treat called ProYo. This caught our eye after Stacey sampled it at a JDRF Walk and learned the company donates to diabetes causes. Founder Nathan Carey explains how he started the business.

And Diabetes Podcast Week may be over, but we hope you consider support Spare a Rose and our sponsor, Wildtree, all month long!

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