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A frank conversation with the folks at Eli Lilly on the price of insulin. Stacey asks Mike Mason, Vice President Lilly Diabetes and Dr. Sherry Martin, Vice President of Medical Development to explain current pricing, answer listener questions and talk about the recent push of state legislatures asking for more price transparency.
We also get some news on the timeline for nasal Glucagon and a word about Lilly’s new push into encapsulation with Sigilon.
Find out more about Lilly's Insulin Affordability Program
In our Know Better segment we’ll talk about that emergency glucagon, how it works, what mini-gluc is and a little more about the nasal version.
More information about state legislators calling for price transparency
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1:40 Stacey welcome, insulin pricing background information
6:00 Interview with Lilly's Mike Mason & Dr. Sherri Martin
40:00 Know Better: Glucagon, Mini Dose Glucagon & Nasal Spray explained
48:20 Where will Stacey be?
April: Touched by Type 1
May: Lilly Blogger Summit
May: JDRF One Challenge with Riding on Insulin
July: Children with Diabetes Friends for Life
October: Children with Diabetes Falls Church
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Dana Lewis first created #DIYPS in December 2013, just so she could better hear her her continuous glucose monitor (CGM) alarms better. Since that time Dana, and many other diabetes tech pioneers, have pushed forward with the Open Artificial Pancreas System. 5 years later we look at what Dana's doing now and what she has in mind for the future.
Dana also shares what the FDA and healthcare companies can learn from the do it yourself community. We also talk about what holds back many people (like Stacey) from jumping it DIY diabetes tech and why Dana says we shouldn't let our fears stop us.
Learn more about The Nightscout Project
Listen to interviews with others in the #WeAreNotWaiting community here.
In our Know Better segment, Stacey shares a new study about about emotions and stacking insulin, and we explain what "stacking" means when it come to diabetes and dosing.
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1:25 Stacey welcome
2:45 Find out more about our Alexa skill and please leave a review!
4:45 Interview with Dana Lewis
Listen to Stacey's 2013 interview with Dana here
51:00 Know Better segment: All about emotional bolusing
59:00 Where will Stacey be?
April: Touched by Type 1
May: Lilly Blogger Summit
May: JDRF One Challenge with Riding on Insulin
July: Children with Diabetes Friends for Life
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The US FDA this week approved the Dexcom G6 system. It means a smaller sensor and is factory calibrated for 10 days of use, which means no fingerstick calibrations.
Stacey talks with Dexcom CEO Kevin Sayer about the details about the system, timeline for consumer availability in the US and internationally as well as what will happen with the G4 and G5 systems already on the market (and integrated with pumps like Tandem and Animas).
Great article from DiabetesMine with more G6 info here
Now available on your Amazon Echo with Alexa!
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Abbott gives us an update on their flash glucose monitor, the FreeStyle Libre. Stacey talks to Principal Clinical Research Manager Tim Dunn who's been working on CGM technology for 20 years.
Stacey mentions "hacks" for the Libre: read more here
In our Community Connection segment, how NC State is stepping up to make changes for students with diabetes. Stacey talks to Lisa Eberhart, a registered dietician and certified diabetes educator who serves as NC State Dining’s director of nutrition and wellness as well as the dining hall manager, Jaelyn Phelps, who lives with type 1.
And in Know Better, we'll take a look at the new standalone CGM from Medtronic. Good article from DiabetesMine here.
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2:00 Stacey welcome. Should you leave your T1D kids at sports practice without a parent?
6:30 Interview with Tim Dunn from Abbott
28:30 Community Connection: Interview with NC State's Lisa Eberhart & Jaelyn Phelps
45:00 Know Better: Medtronic's standalone CGM
49:30 Stacey finishes the story about how her family handles sports and T1D without a parent present and explains more about leaving her kids alone for the day while she went to a JDRF conference.
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Rob Howe spent 30 days using only over-the-counter, old school insulin from Walmart. Why? He has insurance, he can afford newer insulins and he normally wears the newest Medtronic hybrid-closed loop pump. But he says he had a scare when he thought he might not have the money to buy his regular insulin and he realized that he could educate others about how to do it.
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Under the care of a CDE, Rob gave up his pump and switched to older NPH and Regular insulins. We talk about how it went, what he learned and why this is not the answer to rising insulin prices. Rob is the host of Diabetics Doing Things and is a former Washington Generals player! Stacey gets him to talk about playing against the World Famous Harlem Globetrotters.
In our Know Better segment, a couple of follow ups as Tandem goes international to Canada and Scandinavia and a previous guest, Christel Oerum, is out with a new book.
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2:00 Stacey welcome, talks about over the counter insulin and mentions a few articles with more information.
Consumer Reports: How to Get Insulin at a Cheaper Price
NPR: "You Can Buy OTC Insulin, But Should You?"
Diabetic Connect: Buying Insulin Without a Prescription: What to Know
5:00 Interview with Rob Howe
52:00 Know Better: Tandem goes international and Diabetes Strong is out with a new book
58:00 Stacey on the road:
March 2 - JDRF Type One Nation Summit - Greater Chesapeake and Potomac
March 9 - JDRF Type One Nation Summit - Piedmont Triad
April 14 - JDRF One Walk North Charlotte
April 27- Touched by Type 1, Orlando
May 19 - Riding On Insulin One Challenge, Charlotte
July 11 - Children with Diabetes Friends for Life podcast taping
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Find out the latest from Tandem, makers of the T:slim insulin pump. Spokesperson Molly McElwee Malloy shares how close they are to a hybrid closed loop, which they're calling Control IQ, and other products. Malloy. diagnosed with type 1 as a young adult, was in one of the first artificial pancreas trials back in 2006 (not with Tandem). Also a nurse & a CDE, she talks about her personal story and why she's excited about this technology.
In our Know Better Segment.. two potential and very small insulin delivery devices are getting big grants.
And.. it’s almost time for Diabetes Podcast Week!
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1:30 Stacey welcome / explains a bit about the Tandem interview and the ATTD conference.
4:45 Interview with Tandem's Molly McElwee Malloy
49:15 Know Better: JDRF grants for two potential insulin delivery/CGM systems
52:30 Diabetes Podcast Week info
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This week, insulin maker Eli Lilly enters the device market with announcements of a diabetes “ecosystem," including a new automated insulin pump and advanced pens.
Stacey talks to Lilly's Dr. Howard Wolpert & Marie Schiller who both have substantial personal connections to type 1. They talk about why the company made this move, what the tech is all about and yes, Stacey brings up the price of insulin.
In our Shoptalk segment, did you know the American Diabetes Association has someone dedicated to type 1? You’ll hear from Paul Madden, a longtime advocate who's lived with type 1 for 55 years.
We also talk to The Diabetes Scholars Foundation's Mary Podjasek about and college scholarships for students with type 1.
Links for this episode:
"Lilly Initiates Clinical Trial...." (News Release)
DiabetesMine article on Lilly devices
Beyond Type 1 Holiday Carb Charts
Project Blue November Holiday Tips & Special Events
Shoptalk American Diabetes Association
Shoptalk Diabetes Scholars Foundation
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Dexcom's Senior US Medical Director, Tomas Walker, talks to Stacey in a wide-ranging interview. Walker addresses everything from the features of the new G6 system recently submitted to the FDA, changes to the way the adhesive is created (which may have ease skin issues for some) to the news that Dexcom has partnered with Lilly as the insulin maker enters the diabetes device market.
Plus, in our Shoptalk segment, learn about the Genteel lancing device. Stacey talks to Dr. Christopher Jacobs the device inventor and company founder.
Helpful video Stacey mentioned about the Genteel (thanks, Aaron Johnson!)
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2:30 Stacey explains the new Dexcom-Lilly partnership
5:20 Stacey talks about next year and asks for your holiday stories
8:10 Interview with Dexcom's Tomas Walker
38:10 Thanks to listener Richard for some great info!
39:30 Shoptalk segment with Dr. Christopher Jacobs
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In October 2017, Animas announced it would exit the insulin pump business and discontinue the manufacturing and sale of Animas® Vibe® and OneTouch Ping® insulin pumps. Stacey talks to the company's Chief Medical Officer Dr. Brian Levy about what happened, what customers need to know and the future of insulin pumping as a business.
Read the Animas statement here
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Go behind the scenes!
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Join the new Diabetes Connections Facebook Group!
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Learn about the Abbott Freestyle Libre, a Flash Glucose Monitoring System recently approved in the US. We talk to Dr. Chris Thomas, the director of biosensor technology for Abbott about what exactly the Libre is, how it works and who it's for.
Plus, Bigfoot Biomedical is now partnering with Abbott to use the LIbre in their automated insulin delivery system. We talk to CEO Jeffrey Brewer to find out how what this means and what's on the horizon for Bigfoot. Good article on the partnership here from DiabetesMine.
You'll also hear from Steve Hanley of KNOW Foods. Stacey wanted to speak to him after he donated all the bikes to the riders of Bike Beyond and wound up learning all about this new company. You can read more about KNOW Foods in this Sweet Life column by Kerri Sparling.
Stacey also shares her take on overnight school fields trips; Benny recently spent three days away with his school. We also address the closure of Animas, what that means to the podcast, Stacey & her family and to customers. Learn more from Animas here.
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3:00 Stacey talks about Animas
8:00 Stacey talks about Field Trips
15:00 Interview with Chris Thomas, Abbott
33:00 Interview with Jeffrey Brewer, Bigfoot Biomedical
1:19:00 Interview with Steve Hanley, KNOW Foods
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Can using a CGM help people with type 2 diabetes who don't use insulin pumps? Tomas Walker is Dexcom's Director of Clinical Projects. He shares the results of their new DIaMonD study (Multiple Daily Injections and Continuous Glucose Monitoring in Diabetes). Of course we also cover issues relevant to the type 1 community; Stacey asks about CGM use and Medicare coverage, possible changes to the Dexcom adhesive, and closed loop systems.
In our Community Connection this week, blogger Mindy Bartleson says sharing only the positive side of diabetes had a price. After going through some serious burnout, she wants to help others by sharing an honest look at growing up with chronic condition and mental illness. Mindy has a new book and is crowdfunding to publish (click to learn more and help).
Mindy also talks about the untethered or POLI method (pumper on long acting insulin) where she uses both a long-acting injection and her insulin pump.
New segment this week, called Shoptalk! Every diabetes convention has a big vendor floor where exhibitors show off the latest and greatest and educate consumers about their products or business. Stacey interviewed all 50 exhibitors(!) from the Friends for Life Conference and we'll be sharing those stories in the next few months. This week, learn about The Barton Center from associate director Lindsey Charest.
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4:00 Stacey shares an amazing letter from a listener in Japan who says the podcast helped through the "despair" of diagnosis
13:00 Interview with Tomas Walker
31:30 Interview with Mindy Bartleson
50:00 Shoptalk with The Barton Center
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As always, thanks for listening!!
Lots of news from Dexcom recently! Stacey talks with retired Chief Technical Officer Jorge Valdes about the Apple Watch announcement and much more. (This interview took place just before the FDA approved Dexcom G5 for Android, but that news is covered in the episode).
Dexcom/Android info & compatible devices
Stacey also talks about the news that Beyond Type 1 is taking over Diabetes Hands Foundation's TuDiabetes.org and EsTuDiabetes.org
Stacey shares her personal connection to DHF and mentions this Big Blue Test video that she and her son made a few years ago.
Jason Gensler has the unique experience of being one of the longest users of one of the newest insulin pumps. He started in a pivotal trial of the Medtronic 670G two years ago and has been allowed to keep using it ever since. Jason shares his misgivings about going back to Medtronic; he had a bad experience with a previous pump and sensor. He also talks about why he feels this system is revolutionary and has given him a new way of looking at managing T1D.
This interview is the first we're sharing that was not conducted by Stacey. Jason is interviewed by Weston Nordren, Vice President of the Nightscout Foundation and Community Outreach for the Foundation. It was originally presented as a video (you can watch here)
Note: Jason Gensler does NOT work for Medtronic and is not compensated by them. He did not pay for the pump/sensor system as he received it as part of a clinical trial.
This week, Ed Damiano talks about his Bionic Pancreas project. Using a pump called the iLet and a Dexcom CGM, the only information the Bionic Pancreas needs is the user's body weight. It adapts to you, no need to figure out insulin to carb ratios or correction factors. The iLet will eventually come to market using both insulin and glucagon, but the first version will be insulin-only.
Stacey & Ed talk about the long journey to get to this point, why he had to start a brand new kind of company (Beta Bionics) to help bring the iLet to market and just when he expects it to be available.
Stacey also shares some of what she learned at the recent HealthEVoices Conference and talks about the milestone of this episode: It's the 100th regularly scheduled show for Diabetes Connections!
Anthony Hightower has used Afrezza for the past two years. He credits it (along with a Toujeo, a newer basal insuin) with completely changing his T1D management. In addition to excellent numbers, Anthony shares what else Afrezza has to offer. He explains, he liked it so much, he went to work for Mannkind, the company that makes Afrezza. He and Stacey also talk about the challenges Anthony faced since his diagnosis as a teenager. He admits he spent 20 years trying to avoid thinking about diabetes and credits the online community & the Diabetes Unconference with saving his life.
Stacey also shares what those little "clips" are that come with some pump insets. Her family learned the hard way at the beach a while back! She shares how her husband McGyver'd a solution when they'd left the clips at home.
And, find out how to contribute to our 100th episode coming up soon!
Tom Brobson is JDRF's National Director of Research Investment Opportunities. He was diagnosed with type 1 as an adult and has been involved personally in many artificial pancreas trials, the first of which had him hooked up to a computer in the hospital and not allowed to get up or go anywhere without a healthcare professional by his side. Of course, since then, the trials have included trials with equipment as small as a pump, CGM & smart phone.
Stacey recorded Tom as he gave a presentation at a local JDRF walk kickoff event. He talks about stem cell research, the artificial pancreas project and other advances in diabetes technology. He also talks about approvals and access.
In this episode, Stacey also talks about coughing for pain relief during shots and insertions. Really! We also share the adventures of people with T1D in the Arctic and in Alaska as this episode is released.
This week: OpenAPS, Looping, Happ - a bunch of weird sounding terms that are changing the way many manage diabetes. Tim Street has lived with type 1 for 28 years, he writes a blog called Diabettech. Tim talks about the DIY systems out there right now (he's tried almost all of them) and about all the new choices for people with diabetes available now an in the next few years. Lots of conversation in this show about the “art of the possible."
It's also Diabetes Podcast Week! This is the second year of Stacey's campaign to bring together podcasters and video bloggers to benefit Spare a Rose, Save a Child. Diabetes in developing countries can be a death sentence. This Valentine’s day, considering donating the cost of just one rose. That can keep a child with type 1 alive for a month. A dozen roses? That cost can cover a year. Spare a Rose benefits Life for a Child, an International Diabetes Federation Program.
This week, a conversation with Dexcom’s Chief Technical officer Jorge Valdes. Stacey talks with him about challenges and advances in 2016 and they look ahead to what's in the works for next year. Valdes shares what the FDA is currently considering and may approve for 2017, updates us on customer service issues and reacts to Medtronic's hybrid loop system coming out in the spring.
This is our last episode of 2016; there will be no new show released next week. Please check out our archives or search for your favorite topics or guests from the home page. And make sure you sign up for our newsletter (click here). If you didn't win our Sugar Linings Swag contest, we've got a coupon code going out before the end of the year.
Happy Holidays and a safe and happy New Year!!
This week, a big step forward for diabetes technology. The FDA recently approved the very first hybrid closed loop insulin system: the Medtronic MiniMed 670G. Medtronic's Chief Patient Officer Louis Dias and Social Media Manager Karrie Hawbaker talk to Stacey about what this product is, what it isn’t, access to it and what comes next.
Our Community Connection this week features a unique fundraiser, The Elbow Bump Challenge. Find out how 9-year-old Logan hopes to help out his favorite conference, Children with Diabetes, Friends For Life.
And Stacey talks about the Joslin Medalist Study for people living with type 1 for more than 25 years.
Important information this week about Glucagon, emergency treatment for severe low blood sugar. Stacey talks to Julie Settles, the US Medical Lead for Glucagon at Lilly. We find out more about how Glucagon works, when to use it (and when not to) and what the company is working on to make the delivery easier.
Community Connection this week is with James Wedding who convinced an academic summer program to change their Glucagon emergency use policy.
Plus, learn about the Big Blue Test from Diabetes Hands Foundation.
The Type Zero Technologies artificial pancreas project is one of the many racing to market. Their technology comes from years of research, still ongoing, at the University of Virginia. This summer, they announced a new partnership with Tandem. Molly McElwee Malloy, who has type 1 herself, is the head of patient engagement for Type Zero. She talks about the studies, the progress and the emotional and mental side of artificial pancreas projects.
Plus, necessity is the mother of invention and diabetes moms are nothing if not resourceful. In our Community Connection, the inventor of Diabetic Dabs talks about how she come up with this idea. Liz Sacco shares the story of how her son's diagnosis led her to find a why to clean up after finger sticks.
This week, Animas sent a letter to patients and talked to news media about a potential security issue. You can read more here.
Stacey speaks to endocrinologist Dr. Brian Levy, the chief medical officer with Animas.
This week, a conversation with some of the top executives at Animas, checking in on their newest products in development, the latest research and their company plans. Stacey talks to John Wilson, the Worldwide Vice President, Insulin Delivery for Johnson & Johnson and Krishna Venugopalan, the Worldwide Director of Research & Development, Insulin Delivery. They talk about Animas’s version of a hybrid closed loop, further Dexcom integration, remote capabilities and much more.
Stacey also gives her take on all the talk around the "Artificial Pancreas" vs "Hybrid Closed Loop" language that came with the announcement that Medtronic received approval for a first of its kind device.
And we mention the Diabetes Dance Dare, a new social media challenge from the American Diabetes Association.
When you deal with diabetes you deal with a lot of numbers and a lot of data. This week's guest is Dexcom's Senior Vice President of Data Annika Jimenez. She joined the company in 2015 with a Silicon Valley background and brings us up to date on Dexcom's Clarity software program, developments to come and Dexcom's relationship with Nightscout and OpenAPS developers.
In our Community Connection segment, Stacey talks to Sarah Harmon, founder of Poppy Medical ID. As a teenager, Sarah hated wearing a clunky medical bracelet, so she created a new line of ID jewelry. Poppy Medical ID is currently featured on Kickstarter.
Stacey also explains that her contest continues. Leave a review and you could win a gift card. Details here - contest ends September 27, 2016
It's one of the challenges of insulin pumps and continuous glucose monitors: how to keep them on in water, hot weather and sweaty situations. This week, advice from the experts and from listeners about what works. Stacey talks to Certified Diabetes Educator Lisa Foster-McNulty, the director of patient care and education for Integrated Diabetes Services. We also hear from listeners who explain what works for them in the pool, during hot yoga(!) and through sweaty sports.
Stacey also gives an update on the start of middle school for her son and how their new communication system is working.